How can you deal with/treat pins and needles?

Posted by pricklingbodysense @pricklingbodysense, Apr 19 9:15am

Hello,
I am 24 years old. When I was laying in my room with mononucleosis, I meditated on my bodily sensations. After that - I have been feeling pins and needles in my body intensely.

I went to a neurologist, which checked me out. My neurological system is healthy. Yet I get these pins and needles - like when your foot/hand falls asleep - continuously in all of my body (especially both feet and left hand). She said it could just be an oversensitization because of the time I spent focusing on bodily sensations - and called it a «functional neurological symptom».

At first I thought it was positive, like I could feel more of my body and was more «aware» at first.

Yet now - it only feels like a constant buzz. And it is really annoying. I become fixated on it, and feel sorry for myself.

I can also rarely or at any times find information about what really this is called/what to do about it. She said there was information about what could be done about it on a website, yet it did not really provide that much. I would hope that it was possible to cure/minimize the tingling sensations. Are there any resources out there for this or other things about such condition(s)?

Have any of you had any experience with this? And what are the things you associate/think would be a good way forward - to deal with this problem?

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

I have something similar. It’s frustrating. Have you had your vitamin levels checked? B12 and B6? That causes those symptoms with some people.

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@pricklingbodysense
Did the neurologist do any testing or bloodwork?

You could try taking magnesium supplements like Calm or alpha Lipoic acid and Acetyl l carnitine to see if it could help. You may also have a vitamin deficiency or toxicity. Are you vegan or vegetarian?

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@celia16

I have something similar. It’s frustrating. Have you had your vitamin levels checked? B12 and B6? That causes those symptoms with some people.

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Thank you so much for answering, Celia. Sorry to hear that you have it in a similar way. I had my vitamin B12 checked. Not yet B6. Maybe I should have that checked out!

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@dlydailyhope

@pricklingbodysense
Did the neurologist do any testing or bloodwork?

You could try taking magnesium supplements like Calm or alpha Lipoic acid and Acetyl l carnitine to see if it could help. You may also have a vitamin deficiency or toxicity. Are you vegan or vegetarian?

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Hello. Yes. They did blood-tests at the same time, when I checked it among other symptoms because I suspected MS a year and a half ago. I got the prickling by itself however 4 years back in the body.

I do take regular magnesium in 93% daily reference dose. Yet I have never heard of Calm, and alpha Lipoic. Maybe they could help!

Perhaps. I am a vegan. I have been for approximately 2 years. In my blood tests, the levels which have been more consequently low are lykocytes (2,9 last time) and lymphocytes (0,9 last and about the same other times as well). Do not know if this has any connection, however I would be interested to know.

Thank you also so much, for answering, Dlydaily😊

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Certainly as with the previous replies, you want to get your vitamin B12 and folic acid tested. B12 is complicated and especially if you are anywhere near the top of the fail range and still showing normal, and in anycase gey your homocysteine checked. If you have a B12 deficiency, even within the scale, your homocysteine is the strongest means of revealing a B12 deficiency. I was told for about 3 years, despite that my folate was low (my doc sent me a leaflet of foods containing folate) that everything was fine and he put it down to stress as I was a police detective at the time. When I went privately to a clinic and got my homocysteine checked it was 3 times the top end of the accepted range. So many doctors rely on a simple B12 test when it is much more complex than that. I now have had constant tingling in my legs and arms for the best part of 20 years when if checked out properly, I needent have had. Good luck, Graham

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@pricklingbodysense

Thank you so much for answering, Celia. Sorry to hear that you have it in a similar way. I had my vitamin B12 checked. Not yet B6. Maybe I should have that checked out!

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One suggestion would be to keep a food, drink, supplement diary and see if anything corresponds to pins and needles days.

I have a rare hereditary neuropathy and have had lots of pins and needles throughout my life. I have noticed certain meds and supplements really trigger it.

My B12 level is normal, but has been low at times. A few years ago my neurologist suggested some supplements just for good health. One sublingual tab of B12/B6 gave me such strong pins and needles within 20 minutes and they lasted 2 weeks! Next I tried one CoQ10 pill and I had them for about 24 hours. Then I tried tumeric and had P&N for about 24 hours. Multivitamins can cause them too which is probably why I had P&N for months at a time before I made the connection and stopped the supplements. Certain prescription meds do it to me too. So I pay close attention when I try anything new.

I don’t drink alcohol or caffeine but those could also have an impact. It’s worth considering.

Did you take any new meds or supplements with your mono since that’s when it seemed to start?

I hope you can figure it out.

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@californiazebra

One suggestion would be to keep a food, drink, supplement diary and see if anything corresponds to pins and needles days.

I have a rare hereditary neuropathy and have had lots of pins and needles throughout my life. I have noticed certain meds and supplements really trigger it.

My B12 level is normal, but has been low at times. A few years ago my neurologist suggested some supplements just for good health. One sublingual tab of B12/B6 gave me such strong pins and needles within 20 minutes and they lasted 2 weeks! Next I tried one CoQ10 pill and I had them for about 24 hours. Then I tried tumeric and had P&N for about 24 hours. Multivitamins can cause them too which is probably why I had P&N for months at a time before I made the connection and stopped the supplements. Certain prescription meds do it to me too. So I pay close attention when I try anything new.

I don’t drink alcohol or caffeine but those could also have an impact. It’s worth considering.

Did you take any new meds or supplements with your mono since that’s when it seemed to start?

I hope you can figure it out.

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I was B12 deficient and have been taking supplement doctors order. However, I have symptoms after taking the sublingual B12 too. It last for several days after I take it. Also, cold sensations, burning skin, ……it’s odd. It goes away after several days. It returns after another dose. My neurologist has moved out of state.

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@celia16

I was B12 deficient and have been taking supplement doctors order. However, I have symptoms after taking the sublingual B12 too. It last for several days after I take it. Also, cold sensations, burning skin, ……it’s odd. It goes away after several days. It returns after another dose. My neurologist has moved out of state.

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So it sounds like you’re reacting to the supplements. Find another neurologist. You’ll likely have a long wait as a new patient so call ASAP to get an appointment scheduled. If another neurologist bought your neurologist’s practice, you can probably see that neurologist the fastest.

Did you have the symptoms before taking the B12 supplement? If so, maybe other supplements are also bothering you.

I can see where really strong pins and needles might also be interpreted as hot and cold sensations.

Be sure to get your thyroid checked (TSH is the most important test - only one needed really) as hypothyroidism can cause you to feel really cold and tired along with a LOT of other symptoms including neurological ones. It’s a simple blood test.

When I was 30 I had the Epstein Barr Virus (often leads to mono) and the intense fatigue (and other issues) dragged on for 3 years but as it turned out hypothyroidism was part of the problem. Once I was treated for hypothyroidism I felt a lot better.

Hypothyroidism is very common and easily treated. If you have mononucleosis, the doctors may assume all your symptoms are from that when that may only be part of your story. I feel for you.

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@californiazebra

So it sounds like you’re reacting to the supplements. Find another neurologist. You’ll likely have a long wait as a new patient so call ASAP to get an appointment scheduled. If another neurologist bought your neurologist’s practice, you can probably see that neurologist the fastest.

Did you have the symptoms before taking the B12 supplement? If so, maybe other supplements are also bothering you.

I can see where really strong pins and needles might also be interpreted as hot and cold sensations.

Be sure to get your thyroid checked (TSH is the most important test - only one needed really) as hypothyroidism can cause you to feel really cold and tired along with a LOT of other symptoms including neurological ones. It’s a simple blood test.

When I was 30 I had the Epstein Barr Virus (often leads to mono) and the intense fatigue (and other issues) dragged on for 3 years but as it turned out hypothyroidism was part of the problem. Once I was treated for hypothyroidism I felt a lot better.

Hypothyroidism is very common and easily treated. If you have mononucleosis, the doctors may assume all your symptoms are from that when that may only be part of your story. I feel for you.

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I appreciate your comments. I’ll try to get another neurologist. I suppose the supplement is helpful, despite the side effects. My former neurologist says it could take over a year to recover.

Fortunately, my thyroid level is ok. I take Levothyroxine and have had normal blood test….I think my last test was in Feb.

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