Airway clearance

Posted by maryjanechilds @maryjanechilds, Aug 17, 2023

I have MAC (found along with pseudomonas in a sputum culture)and Bronchiectasis. I was treated with Cipro for the pseudomonas and have been on the Big 3 for almost two months for the MAC. Every discussion I read talks about nebulizing with saline solution and daily airway clearance. I have no cough and am unable to cough up any mucous. I use my albuterol inhaler and then my accapella but do not produce any mucous. Does anyone else have “dry” MAC? I do have slight drainage down the back of my throat but I wonder if I could figure out how to clear out my lungs if I would get well faster.

Mary Jane

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

@raney

I will reply tomorrow I have lots of questions I also have gum disease
and loosing bones

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raney. Thanks. Today I asked my dentist if there is anyone he could refer me to for consult and possible help. He is sending my records to a periodontist. Hopefully, I can get help.

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I hope so. Keep us informed.

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@raney

I am in the same boat gun disease and loosing bone..
I have full dentures at the top and partial on the bottom. The roots are showing in the bottom. I plan to just have them all pulled and maybe that will stop the gum disease.
I just read a few days ago about dentures holding bacteria and fungus and continuing the infection .
Rather than using dentures tabs, the surgical said to soak dentures at night in alcohol, of peroxide or in white vinegar after brushing them really well..
Also look at the meds you are taking and the side effects. I am taking one for acid reflux that causes bone loss . I am going to talk to my gastro doc about prescribing something else
Have you seen any ENT? Do you have lost nasal drainage. I am 86 and docs can only treat symptoms because of heart and lung problems

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Hi Raney. I have used omeprazole and esomeprazole (both PPI's) for many years. I changed to Famotidine a few months ago as I'm osteopenic and I'd read about how PPI's are bad for the bones. I never related it to the bones in my mouth. Duh. I can't say I have a lot of sinus draining down my throat but it could be happening to some level. Did you have trouble with fitting the upper denture--staying in place? They simply told me that my bones and gums were not able to support dentures and even fitting a partial is hard as the gums can't tolerate something pressing against them.
What is the gum disease you were told you have? By the way, Lichen Planus is from and unknown cause and there is no cure. Some helpful things can be diet (low acidic products, minimize stress...) I'm really hoping to find some answers. I don't know if I've covered everything and let me know if you think of anything else. I certainly pray good things for you, and me. Faye

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I have been taken Dexlansoprazole DR 60NMG daily for about 3 years. The gastro doc said I would have to be on it forever... I was shocked to learn that I have ostopenia and osteoporosis. I take lots of Ca with D and all the healthy supplements. This one is very expensive.
Gum disease I had to have the upper pulled 45 years ago after UNC Chapel Hill School of dentistry had done the deep scaling, flaps, etc. I do not have a problem with the uppers staying in because I have a bone bulge in upper center of mouth and the upper is molded and fits like a puzzle.
I have started in last few days soaking my dentures in alcohol at night I think the chronic mucus from post nasal drainage, airway clearance, and mucus accumulating under the dentures has caused the problem as well as the PPI..
I plan to have the 11 that are left on lower pulled.. I will soon be 87, complete heart block with pace maker, hiatal hernia, and a cervical vertabrae pressing on my esophagus.. My back is a mess. I have been blending and drinking all my meals for 3 years now. Not going to spend money with derp scaling, flaps and crowns

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@sueinmn

Can you describe your allergy to Mucinex? It must be very rare. I wonder if there is a dye or filler causing the problem.

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Stevens-Johnson Center in my hands and feet when I take Mucinex and or clarithromycin together or separate. This was repeated because I couldn’t believe it when I first took it and it happened

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@pamlw

Stevens-Johnson Center in my hands and feet when I take Mucinex and or clarithromycin together or separate. This was repeated because I couldn’t believe it when I first took it and it happened

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Sorry “syndrome”

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@sueinmn

@maryjanechilds I wonder if you can talk to your doc about nebulizing saline? The albuterol inhaler opens the airways, but does nothing to thin existing mucus (this is where the pseudomonas and MAC bacteria hide and breed. ) The saline would add moisture to your lungs, and possibly loosen the hidden mucus there so you could bring it up using the Acapella.
Maybe it is worth a try?
Sue

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Hi

I was at NJH recently. They recommended using 7 % saline nebulized through the aerobika system with manometer.

I like this because it combines nebulizing with airway clearance, cutting down time.

It also works very well. I had dry bronchiectasis, but within the last year this has changed and this protocol works great.

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@patgreen11

Hi

I was at NJH recently. They recommended using 7 % saline nebulized through the aerobika system with manometer.

I like this because it combines nebulizing with airway clearance, cutting down time.

It also works very well. I had dry bronchiectasis, but within the last year this has changed and this protocol works great.

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@patgreen11 , the manometer use makes a lot of sense to me. But I am curious: is the manometer an add-on for a regular Aerobika or did you get an upgraded Aerobika including a manometer?
If the manometer is an add-on, where did you get it?
Best wishes of great health to all of us!

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Yes I also would like to know where to get or purchase a manometer. I already use the Areobika, but would like to try it with the manometer to see if it works any better.

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@spider109

Yes I also would like to know where to get or purchase a manometer. I already use the Areobika, but would like to try it with the manometer to see if it works any better.

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It comes together as one. Last time I checked they were not easy to find and cost $100. I gave up on getting one.

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