I’ve had reoccurring phyllodes tumors in my breast. First occurrence was July of 23 I had a 8x3 cm removed with a second occurrence in Jan25. The biopsy I had in Dec. was a horrible experience. It was painful and it resulted in fluid leaking out and now I have developed one on the outside of my breast. I have changed doctors and my current doctor’s recommendation is to have a mastectomy. I’m just wondering if this has happened to anyone else? I can’t find a case online that has this recorded.
Yes, My first was 2020 and was removed by Lumpectomy came back as Borderline. My second reoccurrence was in the 2022 and was malignant- did a double mastectomy with .7 margins, no treatment needed. I had my 3rd occurrence in January, had a lumpectomy in February, malignant, currently doing radiation and will do chemo next month. Good news it has not metastasized. Currently being treated at U of M. My situation is a rare case most do not return.
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Hi @anitaditto1006, welcome. I moved your post to this existing discussion about phyllodes tumors.
Read more here:
- Anyone diagnosed with Phyllodes tumor?https://connect.mayoclinic.org/discussion/phyllodes/
I did this so you can read previous posts and connect with fellow members like @johnsoncs1 @knutter1 @cheddar @sarapusc @michelle0509 @malyah @ash2021 @lislordav @yellowdoggirl1 @danielleruddy @ssinkey @marvinjjc @mariewurch and others who also have experience with this type of tumor.
Yes, My first was 2020 and was removed by Lumpectomy came back as Borderline. My second reoccurrence was in the 2022 and was malignant- did a double mastectomy with .7 margins, no treatment needed. I had my 3rd occurrence in January, had a lumpectomy in February, malignant, currently doing radiation and will do chemo next month. Good news it has not metastasized. Currently being treated at U of M. My situation is a rare case most do not return.