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Grover's Disease: What works to help find relief?

Skin Health | Last Active: Apr 28 9:41am | Replies (2059)

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@goodlandlord

Grover’s Disease
I guess I’m a newbie; My derm diagnosed Grover’s less than a month ago. I simply can’t imagine dealing with horrible itch for years. Mine stared with an annoying itch on my back. I thought it was the usual winter dry-skin. Fortunately, it was time for my annual derm checkup. By the time the day of my appointment arrived, I found myself scratching my arms and legs. I didn’t see spots and felt no bumps. My doctor must have seen something on my however, back because he decided to take a biopsy, and scheduled my return in three weeks. Nearly a week after the biopsy, his office called with the Grover’s results. He called in tub of Triamcinolone Acetonide Cream USP, 0.1%. I honestly can’t tell it does anything to relieve the itch. Since the first doctor’s visit, the itching is much worse. It attacks from the top of my head to the feet. Trying not to scratch seems impossible. My sleep bank is begging for attention, but how do you sleep with this ceaseless itch? If any of you seasoned Grover’s have a suggestion, I’d love to know them? I finally visit the doctor again next week. Is there anything special I should request or asked him?

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Replies to "Grover’s Disease I guess I’m a newbie; My derm diagnosed Grover’s less than a month ago...."

Having had GD now for almost 10 years, I have found two things that work for me: ice where it itches for about 20-30 seconds, Cilantro smoothies. If you look back at the old posts on this and the FB site you will find a lot of ways of dealing with this miserable situation.

Also recommend the FB group. Around 3,000 people there with GD. Different things work for different people but very few are "cures" as there is no cure. Some people seem to be having success with Dupixent, which is hard to get and expensive.