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← Return to Always run down with MGUS
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I just came in for a walk from a 1 mile walk. I usually do two or three. I’m exhausted and not able to catch my breath. I came in and started looking up shortness of breath connected with MGUS this is a new development for me in the last couple of months. I was diagnosed in November and since then I have steadily declined in my level of energy. Like you I am busy and active and always on the go and this is slowing me down way too much. I’m wondering if there’s anything I can do to get my energy back ? I eat a good diet ,I drink a lot of water, I take a plethora of supplements. Always have, and I normally walk two or 3 miles each day . Now I’m finding that a mile is about as much as I can do And I miss being outdoors to do it. If Someone has some suggestions, please let me know because this is just not fun.
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I have more energy since following the plant based diet with tumeric from Sloan Kettering for MGUS
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@4kleo I'm so sorry to hear that. When I was first diagnosed with MGUS, I had a similar experience. In retrospect, I have to chalk it up too being terrified. I was so anxious. I went to my PCP who did yet another round of blood analysis and checked me for all the usual suspects when one is experiencing lack of energy. I was convinced the Grim Reaper had me in his insidious clutches, but she reassured me that my blood chemistry did not indicate a problem outside of the M paraprotein in my blood. It took time for me to believe her, however. My energy did not come back right away. I attribute this to heightened anxiety and I did have elevated white blood count for about six months after my diagnosis which I attribute to reactivity. That was three years ago and I have to say that my energy level has returned to whatever normal is for my 73 years.
I'm not implying that this is all in your head, You should probably have a discussion with your PCP about this to rule out any physical complications. Some of our members have experienced lack of energy with their MGUS diagnosis. I do have peripheral neuropathy which slows me down considerably as far as walking is concerned.
What does your hem/onc say?