New alarming symptoms

I’m actually currently experiencing them now. I’m 43. Diagnoses 11 years ago fibromyalgia,total hysterectomy hypothyroidism and now irregular heart rate so chest pain. Dizziness when heart rate goes low now I will tell you I have always had the worst muscle pain. But it is currently getting worst pretty sure I had a heart attack. D-Dimer test came back a normal ct came back no blood clots but 4 nodules in the upper right lung 3 ground glass Been dealing with nauseous bladder hasn’t been working roght for a while. Droopy left eyelid,blurry vision and hearing loss with throat swelling and pain
The last neck Miri was cervicle spine arthritis. But I’ve been suffering with that too
And I have to wait 3 months to get more information on what’s in my lungs depending on if there is growth

Sorry the response is so long. I just wanted you to know I understand

I’m sorry you’re in so much pain. I really appreciate you taking the time to respond to me. It sure sounds like you have a lot more than Fibromyalgia going on.
I’m sending you lots of positive vibes and hoping that you get some answers soon.

Thank you so much. It’s hard. Hopefully within time I will have some sort of update myself. I hope you get some answers as well!
And please let us know how you’re doing too!

It took 30 years for me to figure out that I didn’t have OA nor RA I had gout! And a simple supplement took care of it. But then I asked the doctor to put me on allopurinol, which is what my dad took for gout. That help all of my inflammatory reactions of 30 years that were entirely ignored. Why? Because the best doctors in the world kept looking at the x-rays which presented with an extreme amount of osteoarthritis and tested me for rheumatoid arthritis with negative results. God only knows why they didn’t look for gout. I don’t have an answer, but I suffered terribly. There’s a great supplement. I ordered it on Amazon called ZAZZEE tart cherry capsules. It’s like 20 bucks and overnight. Inflammatory reactions stopped. 22 years ago I was diagnosed with fibromyalgia, but I find it comes and goes if I can get into good acupuncture and then start light exercising and breathe deep like the kind of breathing you do with Yoga the fibromyalgia goes away. If you don’t keep your muscles strong then it seems to be worse so starting an exercise program that I could live with was the most important thing. Good luck.

I was diagnosed about 10 years ago
I just learned about the pain to simple touches and that’s me all over. It hurts so bad if someone pokes me in my arms,hips,my legs and but from above the knee

I feel like my muscles are wasting away. It’s so hard to stand some days (I’m 43) 20 minutes yardwork and I can’t walk for three days. My arms are starting to suffer as bad. I’ve always had in the back of my mind MS. I’m waiting for my first time appointment with my new neurologist now finally. My throat is too tired to swallow food sometimes. Same for my teeth to chew. I can’t imagine fibromyalgia being this bad and living healthy in any way like this. Sorry. It’s been a bad flare day I guess

I’ve had fibromyalgia for 25 years and the touch all over my body has been one of the worst symptoms. You have to learn do much less than you normally do. Not encouraging I know. I tried everything the doctors asked me to try. And I could not lead a normal life on any. I insisted on an opioid to use ONLY when I want to go somewhere and be comfortable. For me, I have no dizziness, etc. I only take half at a time. Hope you find something that works for you.

I’ve had fibromyalgia for 25 years, but have never experienced dizziness or fainting. You might check on the meds you’re on if any.

A simple uric acid level blood test will tell you if maybe you have gout arthritis causing inflammation pain. Also asked to be referred to an endocrinologist so they can test your adrenals. I had the same thing happened to me and it was a function of cortisol and adrenal gland output. I have to stay away from Cortizone injections which I get for my degenerative disc disease. It’s really hard to know what to tell you because you have only given a brief outline of your whole history. The best thing I can offer is to get some books read about the type of things you’re going through get educated And take those resources to the doctor to get referred to specialist and have them test. Many years ago I found out I have an L carnitine deficiency – intercellular. It doesn’t show up on the cheap old blood plasma test that the doctors insist on using. Periodically I would stop taking the carnitine because I felt normal and then all my symptoms came back. Finally, I wanted my doctors to diagnose the carnitine insufficiency. But they are absolutely lame. They won’t do the deep dive and spend the money and try to build insurance anymore and not get paid. So I just take the all carnitine every morning and I have no fatigue and dizziness. If I don’t take it, I get very tired. But my adrenals don’t produce enough whatever they’re supposed to produce. My endocrinologist said that was OK. I’m at the low end of normal. But I know after 30 years is that’s not normal that’s low so that lower adrenal output is what’s compromising my energy. He’s a jerk and I just work around him because I have other stuff going on.. I shouldn’t say he’s a jerk. He’s very confident, but the doctors just don’t care enough because they have such an overload of patience so if you show up within the wide range, they’ve determined is normal even if it’s one point below being outer range, they will tell you you are normal. When I get them to fix the problem and I can be very demanding my numbers go right to the center of normal! What I’m saying is you’re going to have to advocate for yourself. I just went through three weeks of vertigo dizziness. I don’t know why my doctor just wrote down in the notes. But I increased my exercise and did a bunch of other stuff and the vertigo finally went away through the help of the doctors. Don’t rely on them too much when they aren’t doing their job.

I’m 43 and have been dealing with this for 11 years.
It’s been getting worse over the past two years
It’s always there but the FLARES are just intense
I haven’t seen a dr for it since I was diagnosed I took gabapentin but it stopped working. My rheumatologist (I only seen once) basically laughed. Said it was a trash can disease ,repeatedly pushed on my inner elbow (way after it was confirmed ). He seen how much it hurt. I also felt extremely disregarded so I never went back
It is starting to be too much muscle wasting feeling with so little strength in my arms and legs I can barely walk or hold a dinner plate in my flares that seem to be coming after I do ANYTHING I think that’s because they found 4 nodules in my right lung 1 regular and 3 ground glass. I have shortness of breath irregular heart rate I went in 2 days after we thought I was having a heart issue. D Dimer test was positive but ct found no clots but the lung problems. So I have to wait 3 months to have another ct to see if there’s any changes. But I have a lot of the symptoms
But I believe that might be why I am in the height of my flares more consistently
I am ready for pain meds but I was thinking similar to you.
I only want it for the bad days. The rest is survivable. O don’t want anything more longtwrm. I also have hypothyroidism and it’s intense a lot of my health problems have similiar symptoms
I feel like I will be in a wheelchair one day with my legs and the difficulty holding them up
Sorry so long. I’m just in a place where I feel like I’ve had enough
Not depressed or anything. I have a therapist for talk therapy but I’m not emotionally down. I’m just ready for some kind of relief I guess. I used to build houses,lay sod, CNA furniture refurbished all so many things. Doing so little is more painful then the symptoms sometimes

I'm 53 yrs. Old, a recovering addict and have such severe (tears rolling down my face) pain, with anxiety, depression, it's gotten to the point where I'm not sleeping but maybe 0-3 hrs. Of interrupted sleep. I don't have a diagnosis yet. I've been researching and it all points to fibro. The e.r.s are a joke where I live and can't get an appt. With a PCP(primary care physician) for 3-4 months. It has become the most unbearable pain I've ever experienced on a night to night basis. Does anyone have any recommendations or ideas to get me help. I'm to the point of relapsing, I have worked to damn hard to go backwards. Desperate in wa. State