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@janemc

gigi05, thank you for your sweet note!

It seems to me that most people really don't care what others are going through. And even if they have some empathy, a weird blood cancer is way beyond their comprehension. So at the moment you most need support, you feel totally alone.

But here, we do understand, and we do care. You're among friends here.

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Replies to "gigi05, thank you for your sweet note! It seems to me that most people really don't..."

Dear janemc, Well, you could be right. After I was diagnosed with PV I told two “friends” and was shocked by the lack of reaction. Neither asked me what the prognoses was or even how I felt. And, in subsequent conversations that did not change.
Maybe you’re right about “comprehension” but they’re pretty smart and know how to use Google.
I knew these two to be caring people who I thought I could depend on for some support while I myself came to know more about the condition. I was wrong.
I guess it’s just not as “sexy” as other diagnoses! And, I am glad for that.
I’m not a joiner and it took me a long time before I started participating in this forum and I’ve felt better since I did. Both for being able, I hope to provide some help to others, and for being able to “speak” with others who appreciate what Im going through.