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Starting 17th year with ET. What's ahead?

Blood Cancers & Disorders | Last Active: Apr 22 11:17am | Replies (74)

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@colleenyoung

Welcome, @lynns51. I moved your question about about ET with CALR gene to this existing discussion:
- Starting 17th year with ET. What's ahead? https://connect.mayoclinic.org/discussion/starting-17th-year-with-et-whats-ahead/

I did this so you can read previous posts and connect easily with members who have walked this path before you like @nohrt4me @lynnevb @et1055 @lynnebgraham @janemc and many others.

How are you managing the fatigue and headaches?

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Replies to "Welcome, @lynns51. I moved your question about about ET with CALR gene to this existing discussion:..."

I act like I’m not tired, and that makes it worse! The headaches go away if I take 25mg Imitrex my doctor prescribed for me. It works great! I didn’t tell my hematologist/oncologist that I am tired because I am 73 and thought my age and COVID19 are to blame.