1. < Gynecologic Cancers

Vulvar Cancer: Anyone else?

Posted by ali1974 @ali1974, Nov 12, 2020

Hello:
I have posted on other discussion group about my struggle with my health, previous cancer stories and concerns for my genetic history. I can’t seem to get a break. I just had a biopsy today to rule out vulvar cancer. I honestly didn’t even know there was such a thing. Has anyone been diagnosed with this and is it more common than what I have been reading?
I am BRCA2 and MSH6 positive. 2 time breast cancer and ovarian cancer survivor I have lived a drug and alcohol free life it just doesn’t end!

Alice

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

andwho | @andwho | Apr 1 1:04pm
In reply to @bobette1 "Yes I use clobetasol for flare ups." + (show)
@bobette1

Yes I use clobetasol for flare ups.

Jump to this post

Anything OTC?

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2 replies
andwho | @andwho | Apr 3 3:49pm
In reply to @andwho "Anything OTC?" + (show)
@andwho

Anything OTC?

Jump to this post

Anything OTC??

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bobette1 | @bobette1 | Apr 4 10:24am
In reply to @andwho "Anything OTC?" + (show)
@andwho

Anything OTC?

Jump to this post

I don't have anything over the counter but I bet you could use Motrin for swelling and there must be some sort of steroid cream OTC. maybe ask a pharmacist. Sorry I can't be of more help.

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1 reply
susanpagets | @susanpagets | Apr 4 11:01am
In reply to @ali1974 "I would like to add that I’m 46yrs old, married and have 2 daughters. I don’t..." + (show)
@ali1974

I would like to add that I’m 46yrs old, married and have 2 daughters. I don’t understand why I may have this because I have never has a STD or anything. I’m so perplexed by it all.
Thanks for listening!
Alice

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You don't have to have an STD to get vulva cancer. Mine is called Paget's disease,which is cancer. I have had one surgery and most recently using Imiquimod, which is a cream that is a topical chemo. I have had some good results with that. God bless you.

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susanpagets | @susanpagets | Apr 4 11:12am
In reply to @tally9004 "Hi, I am new to the site. I want to get some thoughts on how others..." + (show)
@tally9004

Hi,

I am new to the site. I want to get some thoughts on how others have handled vulvar biopsies. I had an appointment with a nurse practitioner in Sept 2023 for a painful area on my vulva. She said she could not do a biopsy but I should schedule an appointment with the doctor to have a biopsy done. I met with the doctor on 10/24 and instead of a biopsy right then, she wanted to do a surgery which would have been another month to remove the whole inflamed area for a biopsy. I initially said yes, but I now have an appt. this week to do the biopsy. I just can't wait another month to determine if I have cancer. I would like to know the process that others have gone through. Did you get a biopsy first and then see an oncologist or cancer team? I don't want to wait to have surgery, find out it is cancer and then have more surgery later down the road. I have always heard that it is better to have a gyno-oncologist do these types of surgery. I am just pretty confused on the best path to take. Would love to hear thoughts on this.

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I have Paget's disease, Vulvar cancer. I had a biopsy and was diagnosed, then sent to a Gynecologist/Oncologist. She did the surgery. Three years later, it is back. This time, we are using Imiquimod, which is a cream/cancer treatment. This was helpful. I go back in 3 months
Please let me know if I can help in any way. God bless you!

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andwho | @andwho | Apr 4 3:21pm
In reply to @bobette1 "I don't have anything over the counter but I bet you could use Motrin for swelling..." + (show)
@bobette1

I don't have anything over the counter but I bet you could use Motrin for swelling and there must be some sort of steroid cream OTC. maybe ask a pharmacist. Sorry I can't be of more help.

Jump to this post

Thank you!

REPLY
needhelp25 | @needhelp25 | 6 days ago

My 88 year old mother will start radiation in one week and have 15 treatments over 3 weeks. She is legally blind, almost deaf even with hearing aids, and is experiencing cognitive decline over the last couple of months. I am trying to get ready to treat her side affects. Will she have side affects immediately? Aquaphor and sitz baths were suggested at the radiology consultation. Can she use lidocaine on the treated area? Are there any suggestions for the sitz bath ingredients? Any other warnings or suggestions?

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leahchawkins | @leahchawkins | 5 days ago

I have squamous cell vaginal cancer due to HPV. In 1995 I had a total abdominal hysterectomy due to HPV…. And it’s back.
Surgery is not an option as the tumor abuts my urethra and there is not enough tissue to obtain clear margins. Don’t want a permanent urostomy bag, so I have an appointment April 25 with radiation oncology to discuss radiation and chemotherapy and chemoradiation. Possibly 6 weeks….

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