Vulvar Cancer: Anyone else?

Posted by ali1974 @ali1974, Nov 12, 2020

Hello:
I have posted on other discussion group about my struggle with my health, previous cancer stories and concerns for my genetic history. I can’t seem to get a break. I just had a biopsy today to rule out vulvar cancer. I honestly didn’t even know there was such a thing. Has anyone been diagnosed with this and is it more common than what I have been reading?
I am BRCA2 and MSH6 positive. 2 time breast cancer and ovarian cancer survivor I have lived a drug and alcohol free life it just doesn’t end!

Alice

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

andwho | @andwho | 6 days ago

In reply to @bobette1 "I suffer the same. I am 2 years out from surgery/chemo/radiation for stage 3 vulvar cancer...." + (show)

What cream are you using & for what symptoms?
Thanks for any feedback.

andwho | @andwho | 6 days ago

In reply to @wheaton "I think we’re all trying to figure out our new normal. I do experience itching and..." + (show)

Were you itchy & irritated from a yeast/fungal infection? Is that why your doctor prescribed it?

echozepher | @echozepher | 6 days ago

Hello,
I had surgery yesterday in Walnut Creek, California Kaiser for an INGUINAL SENTINEL LYMPH NODE BIOPSY - Bilateral - GroinVULVECTOMY RADICAL.
My pet scan showed negative for any disease in lymph nodes.
I am just wondering if anyone has had surgery and everything looks good and then it metastasized to a different area and how long it took?

Also has anyone used immunotherapy instead of radiation?

Helen, Volunteer Mentor | @naturegirl5 | 5 days ago

@echozepher Welcome to Mayo Clinic Connect. This is a very active Discussion in our Gynecological Cancers Support Group and so I know that you will hear the experiences from others in this Discussion and they will answer your questions.

Your surgery was just yesterday? How are you feeling today?

bobette1 | @bobette1 | 5 days ago

In reply to @andwho "What cream are you using & for what symptoms? Thanks for any feedback." + (show)

I was using a compounded cream of Lidocaine and silvadene cream. I really like that one....when I asked for a refill they gave me clobetasol propionate ointment. Which is ok.

echozepher | @echozepher | 5 days ago

In reply to @naturegirl5 "@echozepher Welcome to Mayo Clinic Connect. This is a very active Discussion in our Gynecological Cancers..." + (show)

Feeling good. Not in any pain.

andwho | @andwho | 5 days ago

In reply to @bobette1 "I was using a compounded cream of Lidocaine and silvadene cream. I really like that one....when..." + (show)

What kind of symptoms do you have? I get a lot of itchiness. Thought lidocaine was a numbing cream & silvadene was for burns?

Trisher | @wheaton | 5 days ago

In reply to @andwho "Were you itchy & irritated from a yeast/fungal infection? Is that why your doctor prescribed it?" + (show)

Yes, it was a fungal infection. I am still getting them and currently using Vagisil. It is helping a lot. I have noticed when I have diarrhea episodes, it tends to get worse. Then it’s time for Greek yogurt for breakfast.
I have also discovered wearing “boy short” underwear helps a lot. I wore them going through radiation but have started wearing them again when I need to.

Helen, Volunteer Mentor | @naturegirl5 | 4 days ago

In reply to @echozepher "Feeling good. Not in any pain." + (show)

@echozepher Oh, good. I'm glad to hear that. Considering that you just had surgery that's wonderful. Thanks for letting me know.

andwho | @andwho | 21 hours ago

In reply to @komiskey10 "Thank you so much. The time for all of my tests is fast approaching and I..." + (show)

Has anyone suffered with Extramammary pagets disease ? I had vulvar cancer stage 1b I. May 2023. Read it could come back as EMPD. Is that true?

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