SOJGREN'S, SMALL FIBER NEUROPOTHY

Posted by penn @penn, Mar 7 2:45pm

WHEN I GOT OUT OF THE CAR TO GO INTO THE HOSPITAL FOR A PROCEDURE I COULD HARDLY WALK ALL OF A SUDDEN?? MY HUSBAND HAD TO HELP ME????? IT BECAME SO BAD THAT THE NURSES HAD TO HELP ME TO THE BATHROOM, HELPED ME SIT DOWN??? IT WAS VERY BAD! NURSES SUGGEST I NEED TO SEE MY RHEUMATOLOGIST AS SOON AS POSSIBLE, THEY SUGGESTED IT WAS THE SOJGREN'S SYNDROME. WILL SEE DR. IN A FEW DAYS FROM NOW! ANYONE EVER HAD THE SAMY SYMPTOMS??

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penn | @penn | 6 days ago

In reply to @pomcrzymimi "He has to test you for ssa and ssb markers ask for that" + (show)

MY NEUROLOGIST GAVE ME A PRESCRIPTION FOR NEUROPOTHY WICH CAUSED VERY SEVERE CONSTPATION AND MEMORY LOSS!!! IM IN BAD SHAPE!!!! PAIN RECTUM AND VAGINAL AREA!! HE SHOULD HAVE KNOWN BETTER THAN TO GIVE THIS DRUG TO ANY OF HIS PATIENTS, ITS A RISK AND HE COULD CARE LESS!

penn | @penn | 5 days ago

In reply to @suetex "Sjogren's can give you small fiber neuropathy (with or without sensory symptoms) which can lead to..." + (show)

Thank You for the information! DR. SHOULD HAVE NEVER GIVEN ME Nortriptyline!!!!! Very upset!

penn | @penn | 5 days ago

In reply to @suetex "Sjogren's can give you small fiber neuropathy (with or without sensory symptoms) which can lead to..." + (show)

Anyone who has Sm.Fiber NEUROPOTHY, lot of horrible nerve pain was given by
Dr. Giving me Nortriptyline pain nerve pain now is unbearable!!! HELP!

suetex | @suetex | 5 days ago

In reply to @penn "I HOPE THERE IS SOME WAY YOU CAN BE HELPED!!! I HAVE, SOJGRENS, SM.FIBER NEUROPOTHY, PAIN,..." + (show)

As far as I can tell, autoimmune conditions are not directly inherited. They can just "pop up", so to speak. Or so it seems to me. The only treatment right now for Sjogren's is IvIg and it is slow and probably for the rest of your life-if your veins hold up. And expensive, if you pay out of pocket. There are drugs in the works but of course we need them now. With that in mind, I would like to hear from anyone who has had to stop IvIg. What happened?

penn | @penn | 5 days ago

In reply to @penn "I HOPE THERE IS SOME WAY YOU CAN BE HELPED!!! I HAVE, SOJGRENS, SM.FIBER NEUROPOTHY, PAIN,..." + (show)

Don't take Nortriptyline! Read about it!
No one on my mother 's side Father's? don't know about my Fathers?
I'm calling that dr. Tomorrow!

penn | @penn | 5 days ago

In reply to @penn "I HOPE THERE IS SOME WAY YOU CAN BE HELPED!!! I HAVE, SOJGRENS, SM.FIBER NEUROPOTHY, PAIN,..." + (show)

I can't take it! Pain so bad! My life has changed 100 %

penn | @penn | 5 days ago

Has any Neuologist's gave a script for Nortriptyline? One of the worst, side memory, severe constipation, pain!!!

penn | @penn | 5 days ago

In reply to @penn "Has any Neuologist's gave a script for Nortriptyline? One of the worst, side memory, severe constipation,..." + (show)

Side effect

artemis1886 | @artemis1886 | 4 days ago

In reply to @penn "I HOPE THERE IS SOME WAY YOU CAN BE HELPED!!! I HAVE, SOJGRENS, SM.FIBER NEUROPOTHY, PAIN,..." + (show)

I have no idea about my father’s side. My mother refuses to be tested for neuropathy. She has tremors like I do from the motor neuropathy. I have been taking the IVIG.