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I have recently been diagnosed with MDS, and have so many questions.

Blood Cancers & Disorders | Last Active: 6 days ago | Replies (7)

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@mick4sb

Thank you so much for your comments. All are very helpful.

I was diagnosed 3 weeks ago. I appreciate your questions that I can use to ask when I get to Mayo. I am in the process of having all of my med records transferred to Mayo Rochester Hematology and Nephrology depts. In addition to MDS, I have CKD along with a complex cyst on my kidney. My Nephrologist has been on holiday and getting her records transferred has been more difficult due to her not being accessible to approve. Hopefully things will move faster next week.

I have my patient portal established. Not sure when I will be going to Mayo, no appointment yet. And not sure where I will have lodging depending on length of stay required.

I live in Santa Barbara Ca, but grew up in Twin Cities and went to UofM. I have lots of friends and family in the Twin Cities, and will try to stay with them when possible. Thank you so much for your kindness.

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Replies to "Thank you so much for your comments. All are very helpful. I was diagnosed 3 weeks..."

Lori, Volunteer Mentor | @loribmt | 6 days ago

Hi @mick4sb Happy to help out. The Mayo campus in Rochester is super easy to navigate, as is Rochester itself.

To assist with your lodging when the time comes:

Here’s a link to a map of the Rochester Campus. You’ll be able to see the hotels in relationship to the campus for easy walking.
https://mcforms.mayo.edu/mc1600-mc1699/mc1663-55.pdf
Mayo also offers free Concierge Services:
Phone: 507-538-8438
Live Chat: https://www.mayoclinic.org/patient-visitor-guide
Email: concierge@mayo.edu
Web form: https://www.mayoclinic.org/patient-visitor-guide/minnesota/becoming-a-patient/concierge-travel-services
~~~

Lodging is a heavily discussed subject in the Visiting Mayo support group. Here are a few of the dicussions:

Closest / best hotel for one night stay
https://connect.mayoclinic.org/discussion/closest-best-hotel-for-one-night-stay/
- Rochester Hotel rooms/kitchenette/grocery suggestions
https://connect.mayoclinic.org/discussion/rochester-hotel-roomskitchenettegrocery-suggestions/
- Rochester hotel with suites, good gym, and free breakfast/wifi
https://connect.mayoclinic.org/discussion/rochester-hotel-with-suites-good-gym-and-free-breakfastwifi/
- Mayo Clinic Rochester MN: Where to Stay? Shuttles? Parking?
https://connect.mayoclinic.org/discussion/where-to-stay-1st-visit
-Which hotels at Mayo in Rochester are connected to skywalk/subway? -https://connect.mayoclinic.org/discussion/hotels/

Let me know if I can help with anything else. Safe travels.
If you grew up in the Twin Cities, then you know spring and summer are better times to visit Rochester anyway, right? 😅

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