Adjusting to life with temporal arteritis

Posted by MLeeB @MLeeB, Mar 21, 2016

Would like to hear from people that have gone thru or going thru temporal artritis. I am now going on my 5 month after being diagnosed. It is getting better but very slowly. Is this normal?

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

Has anyone had a biopsy for GCA at Mayo's? If so, what was the procedure and was it painless?

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@jmwm

Has anyone had a biopsy for GCA at Mayo's? If so, what was the procedure and was it painless?

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I had bi-lateral temporal biopsies in August. Not at Mayo. A surgeon did it at my local hospital in a rural town. I had my choice of a local or complete anesthesia. I chose local, so I could drive myself home. No issues, no pain. Stitches were under my skin and the incision was glued.

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@ropnrose

I had bi-lateral temporal biopsies in August. Not at Mayo. A surgeon did it at my local hospital in a rural town. I had my choice of a local or complete anesthesia. I chose local, so I could drive myself home. No issues, no pain. Stitches were under my skin and the incision was glued.

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Thank you.

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@alysebrunella

Hi @MLeeB, and welcome to Connect. I'm Alyse, and I'm one of the community moderators here. I'm glad to hear that you're slowly adjusting to your recent diagnosis, but can only imagine how life-changing it must be. I found information on lifestyle and home remedies that you may find helpful (http://www.mayoclinic.org/diseases-conditions/giant-cell-arteritis/basics/lifestyle-home-remedies/con-20023109).

Also, I'm tagging @donnalc and @lindy - two members who have wrote about temporal arteritis in the past. I hope you all can share your experiences, as well as any tips or advice.

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I was diagnosed in December 2024 with PMR GCA I am on my 2nd week of Actemra and @ 12 mg methoprednisone. I do get Verdugo maybe about 6 times a week it only lasts about 30 seconds to a minute. As I am tapering down in the prednisone it seems to geting better.

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