Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

I have secondary Raynauds associated with my hypothyroidism. I used to have attacks after completing long runs in cold weather, where the runs were 2 hours or more. My only symptoms were very white fingertips, either one or 2 joints on a few fingers on each hand. One time I was warming my hands in hot water, and I saw the blood flow resume to my finger tips. The blood looked like swirling ink in my fingers.

I have had Raynauds for 50 years. I am 75. Had a positive ANA when I first noticed it. Diagnosed with scleroderma in 2002. 80-90% of sclero patients have Raynauds. I also have PAH secondary to scleroderma.

As part of my treatment, I was on some drugs for PAH like viagra which actually also helped my raynauds. These drugs open up the blood vessels. I use heated rice bags and handwarmers to help keep me warm. Like others, I wear gloves (especially in cold supermarkets!) and try to stay warm.

mine pretty bad (lupus related.) PCP put me on calcium channel blockers-helped enormously! I also have high BP, so he replaced my Lisinopril with this. ur daughter may not tolerate if BP normal... my rheumatologist suggested viagra-says he sees great results with it with his patients

if hers is lupus related, tanning bed one of worst things could do. sun and tanning beds can make lupus worse

primary disease in of itself, not caused by another disease. mine is secondary, as it is caused by my lupus

air conditioned establishments tuff in summer. and just getting ice outta ice tray huge task. and its my understanding that its not just cold that can trigger, its also stress...

btw, in addition to meds, I've found visualizations help me. I can "think" myself back 2 pink sometimes. I visualize my capillaries as huge, raging rivers of red, hot blood. sounds gross and "la-la land" to some, but whatever works...

I have had Raynauds since the 1970’s. I buy packaged hand warmers in bulk. They keep my fingers from turning blue and purple. I was diagnosed with PMR but my rheumatologist says Raynauds is often connected to Lupus.

What is CHILBLAINS? Does anyone bruise REALLY easily? I have bruises everywhere..mostly small round..like someone has taken a cig lighter and burned bruises into my skin (sizes from small pencil erasers to thumb size). My black and blue feet get that way just sitting or laying still. My husband always says ,”SHOW ME YR FEET!” And I bang them tog and massage..get pink Rt away😉.

I am 74 and have had raynauds for 45+ years. When I was 55, I was also diagnosed with scleroderma. 90% of those with scleroderma have raynauds.
I still have 5-10 attacks per day, which I try to manage by keeping my core warm and wearing gloves, particularly in grocery stores. I make rice bags that I heat up in the microwave that I can snuggle up against to help warm me on cold evenings. Also have a pack of Hot Hands in my car.