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Changes after Transplant

Transplants | Last Active: May 21, 2023 | Replies (197)

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@contentandwell

So, @rosemarya you are O.K. driving now? That must have been scary. I feel so fortunate that even Pre-transplant I never had to stop driving. I knew not to even leave the house when I had an HE episode of any strength, even very mild ones. I think my experience was atypical because I could tell when I was getting one, and when I had one it was like I was an observer of my own irrational behavior.
JK

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Replies to "So, @rosemarya you are O.K. driving now? That must have been scary. I feel so fortunate..."

JK, i hear that term all the time what is a HE episode if you don't mind me asking?

@contentandwell my first HE episode is what triggered my liver disease diagnosis. I was comatose for a week and in and out of consciousness for the following two weeks. It was touch and go as to whether I would survive it was so severe. After another month in hospital I was on a pretty heavy lactulose regime. I still had HE episodes on and off pretransplant. Some I was hospitalized for and the minor ones I just let take course. I have no memory of about 10 months that I lost. I had no warning signals just full on episodes. So happy that's behind me now.