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Changes after Transplant

Transplants | Last Active: May 21, 2023 | Replies (197)

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@rosemarya

The need to give up driving and independence is something that we are all going to have to face someday if we are drivers. Shopping and convenience don't matter when safety of self and others is the focus. At 70, that is something that I have to start to be aware of.
However the implication in this FB post was that even young transpant recipients need to be aware of how our medications can affect our response time and seriously affect our driving.

Here is what happened to me several years ago. I was not able to pull into 1 of 3 in-a-row parking spaces. And then I was going to run a red light at an intersection, so my husband had me pull over so he could drive. Next day I called my coordinator and she and I discussed some other symptoms that I was having. She told to me lower my tacrolimus dose and to get my labs drawn along with a prograf kit. Sure enough, my numbers were too high. I guess that is why I encourage patients to call tneir transplant coordinator or team.

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Replies to "The need to give up driving and independence is something that we are all going to..."

So, @rosemarya you are O.K. driving now? That must have been scary. I feel so fortunate that even Pre-transplant I never had to stop driving. I knew not to even leave the house when I had an HE episode of any strength, even very mild ones. I think my experience was atypical because I could tell when I was getting one, and when I had one it was like I was an observer of my own irrational behavior.
JK