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Changes after Transplant

Transplants | Last Active: May 21, 2023 | Replies (197)

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@danab

@contentandwell @glinda I don't really know for sure JK. In my case it seems i catch viruses easy and right now i have 3 basically hounding me. They are CMV from my donor heart, Parvo B19 which i just caught and one in my lungs that is a type of pneumonia called Pneumocystis pneumonia. So now i get 2 monthly treatments IVIG to keep the viruses surpressed and a inhalation treatment for the pneumonia. The funny thing is i feel pretty good except i knotice when my hemoglobin gets really low like 6 i get out of breath easy but that one has been in the 8-10 range lately so i feel like i can do more that what the drs will let me. Thanks Glinda for your words of support i just keep taking each day as it comes Lord willing he is in my corner also and enjoy the good days trying not to let the bad days get me down.

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Replies to "@contentandwell @glinda I don't really know for sure JK. In my case it seems i catch..."

Good keep the attitude up I know all about getting viruses I usually get them once or twice a year as I have severe allergies and severe chronic ashtma but the year I was lucky if you want to say that no viruses but a month of a bacterial infection and am going on week 3 of antibiotics but this is my third antibiotic that I am on for the month as the first two didn't work and I haven't been able to go to the YMCA here except once since I got the infection have been to tired and worn out have done some walking but not for more then 15 minutes at a time then I have to stop I so can't wait to get back to the Y as I hate not exersing I can tell you as long as you keep working at exercising it will get better and you will get stronger and keep all the other stuff playing you under control and at Bay just keep listening to your doctors and yourself and if you can't exercise a whole lot right now even just walking to your car and back is exercise even a little bit helps trust me I know I wasn't able to walk lat year for 4 and a half months wasn't even allowed to move my legs do to my accident so as I say every little bit will help.
I will always be here any time you want or need to talk even if it's for a little encouragement I will be here just wanted to let you know
Glinda