Improving neuropathy without spending a fortune - What actually helps?
I’ve spent a ton of money trying to get rid of or easing my neuropathy with no results. Has anyone had any luck with this?
Interested in more discussions like this? Go to the Neuropathy Support Group.
I have several autoimmune diseases and a couple of cancers but I am posting for my husband who has neuopathy much worse than I do. I'll let the mentors decide whether this should be posted as it involves buying from a THCA dispensery. He asked for a blend for pain and sleep. And it worked
For the first time in ages he was easily able to trim his toenails and enjoyed a sitting meditation that he used to do daily. Just thought I would pass it on. It isn't for everyone.
Jchet, Have not told Dr.
The tiny tablets of METHYLcobalamin are only 50 micrograms.
Anyway, since seeing a TN specialist last week I am now taking 50 mg liquid nightly cabamazepine for a week. Next week , morning and night.
3 rd week, double, 4th week 200 mg twice daily.
Cant understand why so much. I can now brush upper teeth without pain. Only very slight twitch when chewing on right. Perhaps its to try to get the body used to it, so as to be ataxai free as I suffered when on 200mg daily. I fear liver damage after a few months on cabama. Still taking methylcobalamin, but only 150 mcg morning and 150 at night. Thats to try and rebuild missing myelin from the trigeminal nerve. Excess B12 gets readily removed in urine.
The specialist said he would refer me for an MRI. No sign of that yet.
Good luck with yours. James 82 NZ
10 a day seems excessive. Was your B-12 really low? Thanks
I say this wouldn't work for most people because most people have jobs, families and other responsibilities. I believe that by the time PN becomes a problem, a large majority are in their senior years, with other medical issues. Just don't have the amount of time it requires on a daily basis or time to learn what has taken you decades to learn. It's not about money, it's about priorities when your time is limited. I admire you for what you've done, but as I said, your full throttle approach would not be practical for most people.
Responding to your comment on barefoot shoes. I currently have problems finding any shoes that are comfortable. I have a pair of Altra's that are okay comfortable but found the zero drop Altra's uncomfortable. I have been intrigued by the barefoot shoes but hesitate to buy shoes without a recommendation from someone with experience. Which barefoot shoes would you recommend? How do they feel on the bottom of your feet? Most shoes are so uncomfortable for the bottoms of my feet which seem to be very sensitive to the breakdown of the soft bottom shoes. I would really love to find some sandals for the summer that I could wear and have been looking at Hoka brand - I know people who wear Hoka shoes and love them. Thanks
I have several brands - Hike, Leguano, Saguaro and a few unknown brands. It sounds like you need a bit more thickness on the base - my leguanos do not provide that, however, my saguaros are winter boots and they are thicker... none of tge ones I have tried are as protective as thick soled shoes.
Have you heard about the new Sanexas therapy for neuropathy pain? ? I started the Sanexas treatment last year. I have had really good results. I have written a story about my experience and would gladly share it with anyone. Please let me know.
https://connect.mayoclinic.org/comment/645606/