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Changes after Transplant

Transplants | Last Active: May 21, 2023 | Replies (197)

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@danab

Hi @rosemarya well im coming up on year 2 in Jan 2020. I am so blessed that the Lord has given me this new Heart and even with challenges due to viruses i am very happy with my life. I have had a challenging 6 months with my blood count issues but with the great staff of Doctors i believe we may have a good plan in place. My dreams to achieve an ability to do more hiking and camping is probably the area i most miss. Just when i think my workout plan is getting results i have to take a break due to low platelets, wbc, hemoglobin etc. Then the challenges of getting the insurance company to agree with the doctors can be stressful at times. But with prayer and some pleading we now have the ability to get the treatment on a regular basis that seems to help my blood counts that is IVIG on a monthly cycle. Just this week my platelets came up from 22 at the beginning of oct to 44 this past Tuesday. And my wbc is now back in the normal range. Hemoglobin went from 8.8 to 10.0 also. So the doctors let me start working out again. Easy at first but it felt good to get back in the gym for a 10 min workout plus about a mile walking. Which when my counts are low they don't want me doing any strength training just some short walks. I was getting a little tired of being stuck at home. Other than the blood counts tho the Heart is doing great and overall i feel good.

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Replies to "Hi @rosemarya well im coming up on year 2 in Jan 2020. I am so blessed..."

@danab are the platelet problems and blood counts typical after heart transplants? We knew a woman who had a heart transplant when she was around 20. She is now well into her 50s, has two children and is thriving. I hope that you will soon be doing as well too.

I too have been away from my gym due to a fracture so I can sympathize with how you are feeling. At this point I have been back three times in the last week, so that’s a start.
JK

Hi, @ danab, I to am a heart transplant patient and I am at 8 years and 9 moths post transplant and I to have problems with my hemoglobin and platelets right now my hemoglobin is stable but white white count is a little high right now but my red cell are finally back to the low normal range for me as I am battling an infection right now but my transplant team has had me on Vitron C to help keep my hemoglobin and red and white cells up where they are supposed to be I lost count of how many blood transfusions I have had because of getting sick and accidents and I still have a low blood count have dealt with low blood count since before my transplant i have been on the iron supplement. So I truly understand what you are going thru I to work out and walk when I'm feeling well enough to I work out at the YMCA here at home and walk also I'm not allowed to do any of the strength training machines for the upper body mainly do to having some injuries last year and am not strong enough for that yet but I do use the treadmill when I cannot get out in the community to walk and the Nustep, leg press and hip abduction machines my doctor's have cleared me for those am working in getting back up to my walking of 20 thousand to 30 thousand of steps a day but that's only if my body will let me as for my heart with everything I have been thru in the last y are and s half my heart is doing great and as of July my platelets and hemoglobin and red blood cells have stayed stable so I believe that eventually you can have the same results at least that's what I pray and hope for you is. Sorry this was so long
Glinda

@danab, do you mind d if I ask what day in January of 2018 you had your transplant as I said before I am going on 9 years on the 20thof January