Prolia discontinuation

I have checked my research. Dr McCormick says that if your s ores ate - 4 or - 4.1 or - 4.2 you should have an anabolic, which build bones, as anti resorption drugs are not good enough. He says it's like plastering density onto a poor foundation.
Also can you get a TBS, which is a Trabecular score, as with smaller women, the Bone Density can look worse.
He says we must fast before a DEXA scan and have it as early as possible, to get the most accurate reading. I was never told that. X

Unfortunately, there is no safe way except a strong bisphosphonate like Reclast. I had no side effects from Prolia but my dr left and it was time for my injection. I had to find a new dr and deal with insurance. 4 mo later I started having vertebral fractures. I ended up with 6 and had vertebroplasty. It has been the most painful thing I have ever experienced. I will never be able to do some of the things I used to do. It has totally altered my life. I was given another injection as soon as the dr realized what was happening. I was shuffled from dr to dr and finally sent to an "OP" specialist. She started me on Tymlos because my dexa had got so bad from the Prolia rebound. I had been doing tons of reading and research and asked what happens in a few months when the Prolia runs out again. I was told would be ok. I didn't think it would be so my PCP got me in with a huge OP clinic in a major city (3rs one way) . I was told the same thing even though I tried to argue what my research had found. Unfortunately, I was correct and 3 mo after the prolia ran out and I would have had another injection if I had planned to stay on it, I had 2 more fractures. I went to another dr in same clinic and they realized "OOPS" . Their words were "You are in a hole that now we have to dig you out of". I had CTX tests done and still do every 2 mo. It was very high meaning I was having the Prolia rebound. They did a Reclast infusion, which now they realize should have been done before the Tymlos. It brought my ctx down. That was 7 mo ago and if my ctx goes up I will have another infusion. The prolia rebound can last up to 2 years. I hope none of this happens to you. I was only 56 when this started. I have worked extremely hard to get some of my life back. I don't know why drs can't all be on the same page and be educated in the research and all the medicines for OP. I also have had multiple phone visits with Dr Keith McCormick. I would advise you to read up on him and if you feel like it schedule an appt with him. He has been a wonderful resource. Good luck

I’m so sorry to read about your issues with Prolia. I think once we’re diagnosed with osteoporosis/ osteopenia there’s no return.
I was put on Reclast, and was having my infusion religiously every year, for 4 or 5 years.
I slipped on my carpet at home, had 3 fractured ribs, that took forever to heal. So now I have teeth problems, where 3 need to be pulled. Again I’ve been visiting my Periodontist and dentist every 3 months, switching between both.
Perio sent me to dentist, dentist who would not touch me because of Reclast, recommended I go to surgeon, to get a 3rd opinion.
Surgeon checked the molars, stated they were not loose, not good idea to pull, to wait until they are ready to come out. Again all of this misery because of Reclast.
He prescribed a Rinse that seems to work so far.
But everyone on Reclast should weigh the pros and cons when it comes to dental work.
Just my experience with it 😢

I have checked my research. Dr McCormick says that if your s ores ate - 4 or - 4.1 or - 4.2 you should have an anabolic, which build bones, as anti resorption drugs are not good enough. He says it's like plastering density onto a poor foundation.
Also can you get a TBS, which is a Trabecular score, as with smaller women, the Bone Density can look worse.
He says we must fast before a DEXA scan and have it as early as possible, to get the most accurate reading. I was never told that. X

So sorry you are going through this. Was reclast your first Osteoporosis drug or just one in the sequence?

I have watched lots of Dr Doug also look up the Bone guru Dr Keith McCormick who has recently written a book on Bones. It took him 2 years to write with 1200 references. He had multiple fractures at age 40, hence his dedication to bone health. I think his book is available on Amazon and l expect he discusses anabolic versus bisphophonates. Good luck to all of us who took this dreadful drug. I have had 4 injections but l think l will have to have zoledronic acid to counteract the rebound effect. But need to negotiate to have 2g not 4g, then 2g 6 months later, and to have it infused over a longer period of time. Xx

I have been on Prolia for several years. My Dexa scan is showing great improvement. I have had 3 stress fractures in the last year and a half. I in my foot and two in my tibia. Is there any connection to Prolia and stress fractures in the lower leg?

I decided to go on the bio collagen peptide, Fortibone. I will not be taking any other pharma drugs for osteoporosis.