Parkinson’s unresponsive episodes

Posted by bethv @bethv, Sep 16, 2018

My father, 93 years old, is suffering these unresponsive episodes, not to be confused with “freezing” of gait. The episode can last two hours and we think might be related to dehydration. Why can’t I find any mention of this in any web sites that describe Parkinson’s? Only in caregiver sites have I found any information. Is no one studying this phenomenon? There may be some connection here that needs investigation.

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My spouse has the same problem. He says it feels like he has a low blood sugar. Usually it means he needs to eat or his meds. He wants to eat every 2 hours. So I have a variety of things for snacks and regular planned meals.

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Unfortunately I need more information to give you a specific answer. I understand these information are confidential.
The only thing I can say that might be of help and your search is:
As you are aware combination of tremor, rigidity, and progressive postural instability are the main features of parkinsons disease.
freezing of gait:
occurs with walking triggered by initiating stride or barriers/ destinations lasting seconds
It seems his bradykinesia : slow and/ or small amplitude of movements is getting worse.
Due to this fact he is at risk of falls.
I hope this helps with your PD search.
He should see his neurologist, many treatment options are available in theory.

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@bethv

Thank you for the response. Yes, he has been in the ER twice for this...gets IV fluid, seems better. Once he was admitted. Once discharged from ER to home.

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Did the ER say that it was related to dehydration?

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What is your father doing when these episodes start?

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I have a 83 year young patient and she has M.S.A. which is an aggressive form of Parkinsons. It's actually called Multiple System Atrophy. She too has these long blank episodes where she twitches, never blinks, you can see in her face that she is in there but is unable to speak or respond in any way, so I did my own research because the Doctors said that it would go away with Leva-Dopa. It didn't go away. I started to notice when it happens she is in a bit of straining situation or position. I remember in school this boy use to have similar reactions when he saw blood it was like he would almost faint. So I started researching the Vasovagal response and mentioned to the Doctor that I think that is what was happening her Vesovagal nerve was strained doing the movements or positions she was in and he said its very possible that's what was going on. So anyone with similar symptoms research the Vesovagal response it may help.

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@hopeful33250

Hello @bethv

I have been thinking about you and your father's symptoms as well. How is your dad feeling these days?

In a recent post a moderator was addressing the diagnosis of Lewy Body Dementia and I noticed that the "staring-off" episodes as well as Parkinson's-like symptoms are closely related to Lewy Body Dementia. Here is a link to an article about this disorder. It might be helpful to read this article and then talk to you dad's neurologist about any symptoms that your dad has that might be similar.
https://www.mayoclinic.org/diseases-conditions/lewy-body-dementia/symptoms-causes/syc-20352025
I look forward to hearing from you again and knowing how your dad is doing.

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Thank you for sharing this info. I think my husband is exhibiting some of the symptoms..but not all. Appreciate your input and knowledge. 🫂

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@sillyblone

My spouse has the same problem. He says it feels like he has a low blood sugar. Usually it means he needs to eat or his meds. He wants to eat every 2 hours. So I have a variety of things for snacks and regular planned meals.

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Having snack items available is a great, @sillyblone. Did he have blood sugar problems before he was diagnosed with PD?

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No , that is how he described his off times when carbo-dopa was not giving him the same effect as when he took it. Plus, he had Covid a year ago and has not been the same since. We both say Parkinsons is a gift that keeps giving. He has more conditions than a person should have to deal with. He has a cardiac issue that was not there prior. Among other things. I am sure you were just asking about his sugar level..but needed to rant. No one deserves this . Parkinsons is also on my side of the family. My Dad and my brother.My Dad died in 2018 and my brother is in palletive care. I know this illness well and without it sounding ugly. I hate what it does to a person. No cure in site. I feel for everyone who gets this horrible diagnosis. 🫂 to all.

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@sillyblone

No , that is how he described his off times when carbo-dopa was not giving him the same effect as when he took it. Plus, he had Covid a year ago and has not been the same since. We both say Parkinsons is a gift that keeps giving. He has more conditions than a person should have to deal with. He has a cardiac issue that was not there prior. Among other things. I am sure you were just asking about his sugar level..but needed to rant. No one deserves this . Parkinsons is also on my side of the family. My Dad and my brother.My Dad died in 2018 and my brother is in palletive care. I know this illness well and without it sounding ugly. I hate what it does to a person. No cure in site. I feel for everyone who gets this horrible diagnosis. 🫂 to all.

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Please never feel the need to apologize for ranting, @sillyblone. Connect is a great place to vent and express frustration. I understand what you mean when you say, "Parkinsons is a gift that keeps giving." I really appreciate all of the experiences you have had with PD. You've had more family experiences than most people and I certainly respect your efforts to support your husband.

I also appreciate the explanation about how the "off times" are when he feels that he needs to eat. The off times do represent a time when you don't feel normal. Do the snacks tend to make him feel better? If so, in what ways? Does he have greater energy?

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Yes, they do. He also is on some Dash recipes like turkey chili. He loves it as well as spaghetti and meatballs. Non gmo and plant based. He loves air fried sweet potatoes fries..so do I. He would eat every 2 hrs if he could . I also give him a protein drink that I mix with skim milk instead of water. He is stubborn sometimes. But so am I. As long as am on this planet he will get the best care and feel love and yes the occasional argument. I won't let him do anything in the kitchen. He does things that are not safe. I probably will purchase the utensils that will help when he eats. He has a bed that is lower and I taught how to use his hands on his legs to help get up. He does well with it. I cry when needed. Mainly because I am losing him little by little. Breaks my heart. 🫂 ❤️

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