Thank you so much for making make feel less alone ! It is so hard to describe your sx to someone else! And, it decreases my anxiety about these sx to know that other

It's certainly true that there are lots of things about Parkinson's that you do have to just live with. At the same time,while eyou may not be able to eliminate those symptoms, there are ways to make them easier to bear and diminish their impact on your life. I doubt that "you just have to live with it" is very helpful to you. You can seek out support groups where folks have found ways tomitigate the impact of their symptoms , making them easier to tolerate.. For example, PD can affects every muscle in your body , including the mussles that control your eye movement. There are some exercises for those mscles that may help mitigate your double vision, so check with an Opthalmologist. Children often have these problems and with the exercises they can be mitigated. I'm furtunate to have a neurologist who understands these things and she has referred me for various therapies to help. I didn't think I needed a speech therapist, but it turns out that she referred me because I wss having swallowing issues and the muscles for speech are some of the same muscles involved in swallowing, and I certainly don't want to end up with a feeding tube, so I pay attention to everything she tells me. Yes, you have to lieve with them and you can't make them go away, but you CAN do things to mitigate their impact on your life. You may not be able to change neurologists and your doctor may be very good at what he does, just not very good about some of these other things, so if you have good medical care you can get your other needs met elsewhere, like through a suppot group.

My diaagnoosis is Advanced Stage PD. I share many of the symptoms you describe. I'm 80, so I might have had sone of this as a consequence of having so many birthdays. As for your double vision, PzD affects every muscle in ypur bidy, and there are mucles involve in making your eyes play nicely with each other rather than jyst going off on their own. Lots of kids have a "wandering eye"(who goes iff on his own)or a "lazy eye"(who refuses to go along with his brother to look at rhe same things. There arr exercises for your eyes that can help encourage them to work together a bit better and an opthalmologist can give you some to try. (If they work for you, please let your doctor kniw this so if any of his other patients have the problems he can let them know. While it is true that PD can't be cured (yet) and to that extent you do have to accept that. However, often there are things you CAN do to mitigate its impact on you, and that IS something you CAN do about it. Iff you read alot, I would highly recommend gettingbs Kindle because there arr so many features that can make reading easier. 1. You can control both the font style and the font size, which has made a HUGE difference for me. 2. Yoou can control the contrast between the letters and the background, and can even have whiite letters on a black background, and you csn playbaround with these and otger features to tailr the settings that are tge mist comfortable for you. (If you find tthat this us helpful you might also let your doctir know so he can share that with other patients -- also give him the URL for the Mayo PD support group so he can let other patients know that will take advantage of it as they choose. I liive in Germany and don't know enough German (nor do I have the energy to tackle it for thus purpose) so on-line is great! And some folks don't feel comfotable doing things like in-person support groups, and this is helpful to them, too. Let the doctor know that it's miderated by healcare professionals, so if somebody cones up with an idea that may not have merit, the sponsor will gently let them kniw that perhaps setting their hair on fire is not the best approach for treating PD. As for you concern about brain fog and memory, there are some medications that may help mitigate the impact of brain fog and maybe the support group sponsors can describe them and you can ask your doctor about them. And, yeah, it's frustrating and sad and makes me angry sonetimes that my brain doesn't work the way it used to and sometines I am totally befuddled when the pages of something i've printed out fall out of the tray onto the floor and it takes me forever to put them in order. But put it aside for the moment and deal with it another time when the rest if my brain is reporting for duty. I have alson had a chat with my family whuch incudes 3 teenaged grandkids, and explained how my btain isn't working quite right sometimes, so if they notice me doing something that's not a good idea, they will make me aware of it. I won't be offended, but will welcone the help and I won't get mad about if they gently say, "Grandma, are you hungry? If so, I can give you a snack so you won't have to eat the lovely artificial fruit in the fruitbowl. And if I did get mad, I've warned them that they now have 3 grandmas:
1 is their mother's mother (Omi); one is their father's mother (me -regular Grandma) and the 3td one is PD Grandma, who may not act as nice as as Regular Grandma. But both Grandmas
love them. So do what you can to keep exercising your brain when you can and when your PD self takes over for a bit, just fix a nice cup of tea for each of you and keep your fingers crossed that she will go home in a little bit.