Mesenteric Panniculitis: What happens now?

Posted by lisacw @lisacw, Apr 13, 2022

Just got diagnosed from CT scan and really can’t find a whole lot of information. I have been put on steroids and it has helped some with the pain from the inflammation. I want to know more about my diagnosis and be for sure that this is exactly what I got. My question is what steps do I take now? Should I call my primary Dr. And request a MRI to make sure that I don’t have any underlying condition or get with a gastric Dr. I just had a colonoscopy the first of last year.

Interested in more discussions like this? Go to the Digestive Health Support Group.

Lisa Lucier, Moderator | @lisalucier | Apr 9 8:11am

In reply to @elfergin "I should mention, I requested appointment(s) at the Rochester location in MN." + (show)

Hi, @elfergin - dealing with digestive issues since you were little sounds like a lot. And getting no answers or hitting dead ends would indeed be frustrating.

I've merged your discussion with this one here which is also about getting an appointment at Mayo Clinic for digestive concerns. I thought this way you could connect with others discussing similar issues.

I have found personally that when a Mayo Clinic department says they will send me offers of appointment times as openings arise when no appointments are available, they do send me appointment offers. So that function seems to work well, and I've gotten an appointment that way.

Some people will call the appointment number for a given department they want to get an appointment in every day to find out if any openings have come up.

It can be helpful if your primary care or gastroenterologist contacts Mayo Clinic to refer you. Have you had the chance to ask if one of your doctors will do that?

darleneporter | @darleneporter | Apr 9 9:38am

In reply to @bevie24 "I have submitted the form to get an appointment at Mayo Clinic (3) times. I’m contacted..." + (show)

Get on the cancelled appointment list, it works pretty good, they have gotten me appts. They have always called when there's been a cancellation. God Bless

elfergin | @elfergin | Apr 9 12:18pm

In reply to @lisalucier "Hi, @elfergin - dealing with digestive issues since you were little sounds like a lot. And..." + (show)

Thanks for your response, I have not asked one of my doctors to refer me there as Mayo does not require it, but maybe that's a good idea!

thomhorowitz | @thomhorowitz | Apr 12 5:22pm

In reply to @elfergin "Erika here! In Alaska!I have been dealing with digestive issues since I was a little girl...." + (show)

Depending of insurance, Any Medicaid plan has a rule about availability of consult time. One can file a violation claim if care is delayed and plan should coordinate care, even if they must transport you to an appropriate facility outside their geographic area.

thomhorowitz | @thomhorowitz | Apr 12 5:23pm

In reply to @bevie24 "I have submitted the form to get an appointment at Mayo Clinic (3) times. I’m contacted..." + (show)

Many provide contract with major health plans also have a time frame. Contact member services to see if they can facilitate the care needed. Also cc state insurance commissioner .