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Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Blood Cancers & Disorders | Last Active: Jan 16, 2024 | Replies (30)
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@huron

Is anyone dealing with either of these cancers? My oncologist is currently trying to rule out AL Amyloidosis. Still going through testing, but have been diagnosed with Multiple Myeloma.

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Replies to "Is anyone dealing with either of these cancers? My oncologist is currently trying to rule out..."
katgob | @katgob | Apr 7 10:48am

huron
Have you entered either of these 2 cancers above in the search. There are many discussions on this site. Also, soon you will have a post from a moderator or someone who is in the know about your concerns.
I am an MDS patient, and I found almost all answers to my questions here on connect. I am treated at City of Hope in California but all information and compassion i found here is precious and helpful. Relevant and useful. Coming directly from those who have traveled this path.

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Ginger, Volunteer Mentor | @gingerw | Apr 7 12:17pm

@huron Welcome to Mayo Clinic Connect!

If you go to the blood cancer support group, which is where we are right now, and use the search bar to type in multiple myeloma, it will give you discussion and comments where that is mentioned. Here is a thread that might interest you: https://connect.mayoclinic.org/discussion/myeloma-newly-diagnosed/

What has your medical team talked to you about as far as treatment is concerned?
Ginger

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scy | @scy | Apr 7 3:51pm

Sorry
I do not know anything about these diagnosis

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