Hi @dax1million I just wanted to check in with you to see how your husband is doing after this first chemo cycle. I’ve not heard of Vicaba. Could it be Vidaza?
You’re so right it is Vidaza. He had his follow up with his wonderful doctor at Levine cancer center Charlotte. The doctor seemed please with his chemotherapy, he said it is doing exactly as he thought it would for the first round of treatment. He prescribed some medicines as precautions such as an antibiotic and anti fungal. He told us in the beginning the chemo would bring his numbers down and start to go back up. We left with hope that that he is responding and God answers prayers. Thank you Lori, so kind of you to inquire about him. His next appt with the doctor is May 6, I will let you know how it goes. Sincerely Elizabeth
You’re so right it is Vidaza. He had his follow up with his wonderful doctor at Levine cancer center Charlotte. The doctor seemed please with his chemotherapy, he said it is doing exactly as he thought it would for the first round of treatment. He prescribed some medicines as precautions such as an antibiotic and anti fungal. He told us in the beginning the chemo would bring his numbers down and start to go back up. We left with hope that that he is responding and God answers prayers. Thank you Lori, so kind of you to inquire about him. His next appt with the doctor is May 6, I will let you know how it goes. Sincerely Elizabeth
Hi Elizabeth! That’s really great news about your husband’s response to the Vidaza. It has a good track record. I know it can feel alarming to see those numbers going down but it is all part of a normal chemo cycle. The anti-fungal and anti-bacterial meds will act as a temporary immune system for him! So hang in there and give your husband an ‘air hug’ from me…yes, I’m a hugger. 😅
Next question is, how are YOU doing?
Hi Elizabeth! That’s really great news about your husband’s response to the Vidaza. It has a good track record. I know it can feel alarming to see those numbers going down but it is all part of a normal chemo cycle. The anti-fungal and anti-bacterial meds will act as a temporary immune system for him! So hang in there and give your husband an ‘air hug’ from me…yes, I’m a hugger. 😅
Next question is, how are YOU doing?
Hanging in there and taking care of him. I have always been a people person that always has something going on but he is my biggest concern now. He encourages me to get out but I’m afraid he might need me. Especially when he is so weak. I’ll make it tho.
Thanks for all your kind words and most of all for experience and information.
Elizabeth
I can relate to blindsided, I was diagnose with Primary myleofibrousis (anemic) in July 2023. I put on Jakafi in September of 2023. 10mg twice daily. I decided not to let this define me and trying to keep my life in order. My question or maybe just a statement--it seems like the oncologist only looks at my blood counts and asked about symptoms only related to Jakafi and myleofibrousis. I also have hypothyroidism, but only my GP looks at that. It seems like no one is looking a whole person approach. Just wonder it there is any relationships to the two diseases.
I can relate to blindsided, I was diagnose with Primary myleofibrousis (anemic) in July 2023. I put on Jakafi in September of 2023. 10mg twice daily. I decided not to let this define me and trying to keep my life in order. My question or maybe just a statement--it seems like the oncologist only looks at my blood counts and asked about symptoms only related to Jakafi and myleofibrousis. I also have hypothyroidism, but only my GP looks at that. It seems like no one is looking a whole person approach. Just wonder it there is any relationships to the two diseases.
I agree that the whole person approach is better. I finally have a decent primary doctor who listens. I just saw the O/H and she feels I do have Myelofibrosis rather than ET. That is probably because I asked for a bone marrow biopsy. The good news is I am very low rush on one scales and low risk on the second one. So just aspirin for me right now and still no symptoms for which I thank God!
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You’re so right it is Vidaza. He had his follow up with his wonderful doctor at Levine cancer center Charlotte. The doctor seemed please with his chemotherapy, he said it is doing exactly as he thought it would for the first round of treatment. He prescribed some medicines as precautions such as an antibiotic and anti fungal. He told us in the beginning the chemo would bring his numbers down and start to go back up. We left with hope that that he is responding and God answers prayers. Thank you Lori, so kind of you to inquire about him. His next appt with the doctor is May 6, I will let you know how it goes. Sincerely Elizabeth
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Hug
2 ReactionsHi Elizabeth! That’s really great news about your husband’s response to the Vidaza. It has a good track record. I know it can feel alarming to see those numbers going down but it is all part of a normal chemo cycle. The anti-fungal and anti-bacterial meds will act as a temporary immune system for him! So hang in there and give your husband an ‘air hug’ from me…yes, I’m a hugger. 😅
Next question is, how are YOU doing?
Hanging in there and taking care of him. I have always been a people person that always has something going on but he is my biggest concern now. He encourages me to get out but I’m afraid he might need me. Especially when he is so weak. I’ll make it tho.
Thanks for all your kind words and most of all for experience and information.
Elizabeth
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Like -
Helpful -
Hug
1 ReactionI can relate to blindsided, I was diagnose with Primary myleofibrousis (anemic) in July 2023. I put on Jakafi in September of 2023. 10mg twice daily. I decided not to let this define me and trying to keep my life in order. My question or maybe just a statement--it seems like the oncologist only looks at my blood counts and asked about symptoms only related to Jakafi and myleofibrousis. I also have hypothyroidism, but only my GP looks at that. It seems like no one is looking a whole person approach. Just wonder it there is any relationships to the two diseases.
-
Like -
Helpful -
Hug
1 ReactionHi,
I agree that the whole person approach is better. I finally have a decent primary doctor who listens. I just saw the O/H and she feels I do have Myelofibrosis rather than ET. That is probably because I asked for a bone marrow biopsy. The good news is I am very low rush on one scales and low risk on the second one. So just aspirin for me right now and still no symptoms for which I thank God!