Who else is living with Mixed Connective Tissues Disease

I use topical NSAIDs. Moist heat also helps me. I am on opioid medication and muscle relaxer. I don’t think the pain ever goes away but you can get the pain to go away a little bit so you can tolerate it.

I'm 55 and have had to obtain meds from outside the USA becasue doctors are arrogant and not interested in helping me unless I am curled up and folded in pain. I gave up, had to quit my job, and everything is just a blur of debt now! I need to find doctors who care and who are competent, hard in this region...

I think doctors don’t want to or are unable to prescribe opioids. I don’t think they understand

Do you mind telling me what muscle relaxers and opioids that is prescribed for you.

Thanks for responding to my message

You may want to look into LDN which is low-dose naltrexone for pain and autoimmune issues, as well as for many other conditions. See website ldnresearchtrust.org. for a wealth of information about using low-dose naltrexone, prescribing doctors, and compounding pharmacies
There is also a podcast--LDN radio show.
Linda Elsegood is author of several books on the subject of LDN.

*** from my previous post…forgot to mention:
I am not sure whether low-dose naltrexone can be taken if you are also on opioids. Perhaps it is permitted with the low dosage which is off label for naltrexone, regular strengths.

I go to a pain management specialist, who knows and trusts me. A regular doctor is paranoid about prescribing meds that actually help. So... I've been on tramadol 200 mg per day, for years. Since I don't ever take it to get high, and don't drink, smoke, or use any other drugs, she has no problem with me, and the tramadol has never lost effectiveness. Best of luck to you.

I was diagnosed with MCTD last fall and my symptoms seem different than some others I’ve talked to who have this. I have brain fog, depression, fatigue and sometimes GI issues although I think I’ve been able to control the GI issues with supplements and diet. Diet and walking for me has been crucial. And not drinking much alcohol. I also supplement with many things - the most important again for me seem to be: collagen, collostrum, creatine, methylated multi vitamin, methyl folate, tumeric , omega , probiotic,glutathione, etc… but I also believe I’ve had breast implant illness and a lot has been caused from that and had them removed in March this year. I believe I had the Immune disorder all my life but it’s gotten worse since hitting 50, Covid , and being in perimenopause

I take the methylated folate and methylated MTV because I also recently found out that I have one gene mutation after getting tested for MTHR, so I was taking folic acid for a while but stopped as I should be taking methyl folate.

I’m sure depending on your state it works differently for writing a prescription for controlled substance medications. I’ve been on Klonapin for years in Massachusetts for bilateral tinnitus and it’s a very low dose.
I moved to Georgia last year, had to agree to see a psychiatrist. After 90 minutes she said I will submit a letter to your pcp that you are completely fine, stable on your feet and not at all foggy or forgetful other than normal age related.
I just changed my primary doctor because we moved to a new location and they make me do a 3 month med check. It’s all new for me.