I was recently diagnosed with the same situation; similarly, an overstretched and "dead bladder" with no cure. I feel like my life has abruptly taken a severe downturn. I saved to be able to travel, but I self cath at least 10 times a day--seemingly much more than others--and I can't take that many catheters without risk of loss. And the cost for what Medicare doesn't cover is about $500 a month. This situation has also imperiled my mental health inasmuch as I was previously spoiled; a very heathy person. How do you fellow suffers deal with this? I have trouble coming to acceptance. Thanks. Tom
My dad is 76. Previously a completely healthy man. He had a procedure called prostatic artery embolization about a year ago. Was supposed to be a simple procedure. However, I believe there were errors made and now a year later, he has a “dead bladder” as well. He has to use nephrostomy tubes. Very uncomfortable and obviously inconvenient to not be able to live life how he had just 1 year ago. It has definitely taken a toll on his mental health as well. Anybody else dealing with this? Does anybody know of other solutions for a dead bladder? Besides the invasive surgery which he has decided against.
My dad is 76. Previously a completely healthy man. He had a procedure called prostatic artery embolization about a year ago. Was supposed to be a simple procedure. However, I believe there were errors made and now a year later, he has a “dead bladder” as well. He has to use nephrostomy tubes. Very uncomfortable and obviously inconvenient to not be able to live life how he had just 1 year ago. It has definitely taken a toll on his mental health as well. Anybody else dealing with this? Does anybody know of other solutions for a dead bladder? Besides the invasive surgery which he has decided against.
@awolfe, does your dad have what is referred to as an atonic bladder, sometimes called a flaccid or acontractile bladder, refers to a bladder whose muscles don’t fully contract.
@awolfe, does your dad have what is referred to as an atonic bladder, sometimes called a flaccid or acontractile bladder, refers to a bladder whose muscles don’t fully contract.
Sorry! I didn’t realize I had gotten a reply..
Here’s what is in the urologist’s notes:
Decreased bladder capacity with decreased bladder compliance. Some increased eletromyographic activity of the bladder. The bladder did also show hypocontractility. Sphincteric weakness was confirmed with significant urinary leakage with bladder filling.
Tom, I'm so sorry for your situation! I received my catheters from Medical 180 with minimal cost. I'm on Medicare as well. You would have to get a prescription from your Dr. for these. If contact info is needed, let me know. As far as possible help I suggest getting a referral to Mayo Clinic. I had an enlarged prostate which Dr. Wymer did a procedure called a HoLep, decreasing the size of the prostate. He is at Minneapolis, Minnesota. If there is any help for you it's at MAYO, they are fantastic!!!
@awolfe, does your dad have what is referred to as an atonic bladder, sometimes called a flaccid or acontractile bladder, refers to a bladder whose muscles don’t fully contract.
If there is any help for your dad it will be at MAYO. They are fantastic! I went to Minneapolis, Minnesota to Dr Wymer. You would need a referral from your primary care Dr.
Tom, I'm so sorry for your situation! I received my catheters from Medical 180 with minimal cost. I'm on Medicare as well. You would have to get a prescription from your Dr. for these. If contact info is needed, let me know. As far as possible help I suggest getting a referral to Mayo Clinic. I had an enlarged prostate which Dr. Wymer did a procedure called a HoLep, decreasing the size of the prostate. He is at Minneapolis, Minnesota. If there is any help for you it's at MAYO, they are fantastic!!!
I have tried to get into Mayo Phoenix / Scottsdale for over 3 years. Each time they say they aren’t accepting new urology patients and do not have a wait list. In essence, they say no way. Perhaps they don’t like Medicare. All about the dollars. Very frustrating.
I have tried to get into Mayo Phoenix / Scottsdale for over 3 years. Each time they say they aren’t accepting new urology patients and do not have a wait list. In essence, they say no way. Perhaps they don’t like Medicare. All about the dollars. Very frustrating.
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TURP was not the procedure to help my problem. So, no there wasn't a choice.
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1 ReactionMy dad is 76. Previously a completely healthy man. He had a procedure called prostatic artery embolization about a year ago. Was supposed to be a simple procedure. However, I believe there were errors made and now a year later, he has a “dead bladder” as well. He has to use nephrostomy tubes. Very uncomfortable and obviously inconvenient to not be able to live life how he had just 1 year ago. It has definitely taken a toll on his mental health as well. Anybody else dealing with this? Does anybody know of other solutions for a dead bladder? Besides the invasive surgery which he has decided against.
@awolfe, does your dad have what is referred to as an atonic bladder, sometimes called a flaccid or acontractile bladder, refers to a bladder whose muscles don’t fully contract.
- Atonic Bladder: What Does It Mean? https://www.healthline.com/health/atonic-bladder
Does this article describe what your dad is experiencing?
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1 ReactionSorry! I didn’t realize I had gotten a reply..
Here’s what is in the urologist’s notes:
Decreased bladder capacity with decreased bladder compliance. Some increased eletromyographic activity of the bladder. The bladder did also show hypocontractility. Sphincteric weakness was confirmed with significant urinary leakage with bladder filling.
Tom, I'm so sorry for your situation! I received my catheters from Medical 180 with minimal cost. I'm on Medicare as well. You would have to get a prescription from your Dr. for these. If contact info is needed, let me know. As far as possible help I suggest getting a referral to Mayo Clinic. I had an enlarged prostate which Dr. Wymer did a procedure called a HoLep, decreasing the size of the prostate. He is at Minneapolis, Minnesota. If there is any help for you it's at MAYO, they are fantastic!!!
If there is any help for your dad it will be at MAYO. They are fantastic! I went to Minneapolis, Minnesota to Dr Wymer. You would need a referral from your primary care Dr.
I have tried to get into Mayo Phoenix / Scottsdale for over 3 years. Each time they say they aren’t accepting new urology patients and do not have a wait list. In essence, they say no way. Perhaps they don’t like Medicare. All about the dollars. Very frustrating.
If at all possible, try Rochester Minnestoa. They dealt with my Medicare and they're great there.