Post-Vaccine Paresthesia and EBV – Anyone Else Experiencing This?

I had a very similar reaction right after my second Pfizer vaccine. I went on steroids which helped but did not completely get rid of the paresthesia. I have not had a lot of luck with doctors figuring it out but I have very recently found a correlation to how drugs are broken down in your liver when you have Gilbert’s Syndrome (which I have). By any chance, do you have Gilbert’s as well? I have had several odd drug responses and I’m wondering if it has to do with my liver and Gilbert’s.

That's interesting, but I don't have Gilbert's Syndrome as far as I know, I had to look that up. My hepatic panels have always come back normal.

I had the two dose Pfizer covid vaccine and also one booster. I did notice that immediately after getting the very first shot I had an odd tingling sensation in my fingertips. That has never gone away, just eventually spread to the arms and legs, and sometimes I can feel it everywhere. It's like a combination tingling/burning/numbness, very odd, but uncomfortable and unsettling.

Yes my tingling has not gone away completely either. Gilbert’s is typically a benign condition but I’m learning that people can have adverse drug reactions if you have it. It is also one of those conditions that goes undetected unless specifically looked for or randomly found.

Good to know, I'll ask my doctor about that.

Since getting the moderna vaccine, one shot , i have had what feels like an adrenaline rush in my lower legs. I have now had it 24-7 for 4 years.
One week after the shot, my arms went numb. I was told to go to ER. ER doc said he was seeing this from the vax. I said may I record what you are saying, and he said no. The numb arm feeling was gone after three weeks. I have been to 2 neurologists and they did notbfind anything. I do acupuncture but that only helps for half a day. I take magnesium but the feeling does not abate. I take spike protein detox with zero results. The feeling is worse when I exercise a lot - ie bike 20 and walk 5 miles in same day. What is interesting is that when i am stressed at work, the feeling intensifies. That tells me that it is inflammation. Thanks for sharing all those tests you have taken. I will now ask for them.
I have even tried giving blood.
That works for half a day. I am seriously concerned with this poison in my body that I cannot get rid of. I am seriously concerned with long term side affects. Before that i mever had any health stuff. I work out 6 days a week. As of the end of july this year, i now have a numb and tingling left arm. There was an article about “long vaccine”. Has anyone seen it?

Sorry to hear, it's definitely frustrating. I've tried many things, am currently on the Patterson protocol, we'll see how it goes. The tests that drive this protocol are the Cytokine 14 marker panel and the Immune Subset Panel with S1. For more info look up the covidlonghaulers website and the Yale paper on post vaccination syndrome.

I woke up in the middle of the night exactly 11 days after my first Pfizer Covid vaccination, April of 2021. I thought I was having a heart attack because my feet and hands felt like they were frostbitten, and my arms and legs were tingly numb. Days later, the right side of my face went numb. Most of my symptoms subsided after several months with the exception of the tip of my tongue, which continues to be a bit numb to this day. 18 months ago, after a breast biopsy, my symptoms returned for a couple of months. Then, just short of a year ago, I was the victim of a car accident. A young girl on her phone slammed into the back of my car on the highway. After a couple of days recovering from whiplash, my GPS symptoms returned to my arms and hands. I have been suffering ever since and have not slept through the night since the accident. My hands and fingers feel like they are frostbitten, and I suffer in pain throughout the night. The local doctors here in Charlotte, North Carolina are completely clueless about GBS. I feel gaslighted from all of them when I explain my symptoms. I did have a neurology baseline at the Mayo Clinic before having a double mastectomy last year because I feared that the GBS would return after that surgery, but it didn’t. I need to go back to the Mayo Clinic and find out how to treat the symptoms because I’m absolutely exhausted.

@hezparker
I have Gibert’s and had an adverse reaction to the Moderna vaccine and 4.5+ years of suffering since, but mainly with Occipital & Trigeminal Neuralgia and chronic Migraines. In addition to constant dizziness, vertigo, blurry vision, joint pain and fatigue. My Primary Care runs blood workups frequently and typical liver numbers concern her, but I finally found a Liver specialist than understands Gilbert’s and is monitoring all of the medications the specialist gave me on. No one has made a correlation between the vaccine, Gilbert’s and my condition yet. But I do wonder if there is. As more Long-Covid and Post-Covid Vaccine Syndrome research gets published, I’m hoping for clearer answers.

Hi! I happened to come across your post while looking for information about small fiber neuropathy. Have you seen any improvement with the treatment you mentioned? Five days after my first vaccine dose, I started experiencing tiny cramps, unpleasant tingling, and a burning sensation in my calves. I’ve had various tests, but never got an actual diagnosis. Many people thought I was just being a hypochondriac or that I was crazy. I also share that my lab results show altered immunoglobulins, specifically IgA, which is very high. Are you still getting tests done? I hope you’re doing well.

@miguelsz I've gone from thinking it was lyme, to post covid vaccine syndrome, to mycotoxin poisoning. I did the Patterson protocol after taking the Radiance Cytokine-14 panel, but after 3 months it didn't seem to be having any effect which led to the mycotoxin test. Currently on binders, still haven't turned things around. The problem is that most of the symptoms for these various things are quite similar, and some of the testing (especially for lyme) is not very accurate, so it's like trying to find your way through a maze in the dark. I have another test coming up, t-cell related. I can't tell you how many blood tests I've had in the last 5 years lol

I know what you mean about people thinking you are a hypochondriac, they don't understand. But its real, we both know it. After a while I just stopped talking about it too much because I can see that people are just like, oh, here he goes again. Not to mention that conventional medicine seems woefully out of touch with these sort of conditions. And doctors are not very motivated to diagnose something unusual or out of the mainstream, at least in the USA.

I wish you success in your journey and I hope you feel better soon.