Post craniotomy

Posted by tbusker @tbusker, 3 days ago

I am 10 weeks post frontal lobe craniotomy. I am having some weird sensations and wondering if anyone else has had them.

Throbbing in the surgical area....is this the nerves coming back.

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Hi tbusker, I had a lot of strange sensations after my frontal lobe craniotomy. As a matter of fact, I am now 2 years and 2 months post craniotomy, and I still have odd sensations when touching any part of that side of my head. In my case the sensations lessoned over time, now it is only when I touch it.

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I had a left sided craniotomy a year and a half ago. For six months the trigeminal nerve on the left side of my head would tingle. It was better at 3 months ,and then finally around 6 months I noticed it wasn't bothering me anymore.

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didANY OF YOU HAVE RADIATION THERAPY AFTER YOUR CRANIOTOMY? i HAD A GRAD
3 . . RIFHT FRONTAL LOBE MENGENOMA DOCTOR WANTS TO DO PROTON RADIATION THERAPY TO KILL ANY REMAIN CANCER CELLS. I AM WONDERING IF THAT IS BEST AT THIS TIME OR WAIT TO SEE IF IT STARTS TO REGROW. DOES ANYONE HAVE AN OPINION OR ANY EXPERIENCE IN THIS MATTER?

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@kbsmith05

didANY OF YOU HAVE RADIATION THERAPY AFTER YOUR CRANIOTOMY? i HAD A GRAD
3 . . RIFHT FRONTAL LOBE MENGENOMA DOCTOR WANTS TO DO PROTON RADIATION THERAPY TO KILL ANY REMAIN CANCER CELLS. I AM WONDERING IF THAT IS BEST AT THIS TIME OR WAIT TO SEE IF IT STARTS TO REGROW. DOES ANYONE HAVE AN OPINION OR ANY EXPERIENCE IN THIS MATTER?

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I did not have any radiation afterwards.

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@kbsmith05

didANY OF YOU HAVE RADIATION THERAPY AFTER YOUR CRANIOTOMY? i HAD A GRAD
3 . . RIFHT FRONTAL LOBE MENGENOMA DOCTOR WANTS TO DO PROTON RADIATION THERAPY TO KILL ANY REMAIN CANCER CELLS. I AM WONDERING IF THAT IS BEST AT THIS TIME OR WAIT TO SEE IF IT STARTS TO REGROW. DOES ANYONE HAVE AN OPINION OR ANY EXPERIENCE IN THIS MATTER?

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I had a Grade 2 Oligodendroglioma. In my case they suggested no treatment, but I do have to have a MRI every 3 months forever

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@stephaniefossum

I had a Grade 2 Oligodendroglioma. In my case they suggested no treatment, but I do have to have a MRI every 3 months forever

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Same here. I'm not super excited about the MRI every 3 months. Worried about the possible health effects of that. I was offered a targeted med, but it has only been on the market for a few months and can have effects on the liver. That didn't feel right to me

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