I can’t recall where I looked it up. Mostly hospital sites. My main question was how will the results affect my treatment? If they are using our monthly labs to dictate which meds and how much to take, I asked
Why is it necessary? Basically he told
Me straight forward that the test would not change my treatment. As long as I can control my hematocrit and platelets with the hydroxyurea, 3X a week now for almost two years, and phlebotomies every few months(when hematocrit is over 45) treatment remains the same. So basically they give you the choice for final confirmation of the disease. I’m JAK2 positive and diagnosed with PV soley from bloodwork. It’s a personal decision. I was 56, NEVER sick or taking any medications, so I was shocked. But… wasn’t letting them make me go through that and pay for it also if it wasn’t going to change anything. Every person’s situation is different. Speak to your doctor and think on it.