Connect
Need Help
I don't know where to start so first thing is about me I'm 38 yrs old and have a history of all sorts of weird things wrong with me like anemia I use to have such bad periods. I have tachycardia but blood pressure is fine. I get uti alot more so when younger kidney infections every single ua I have has blood in it. Random fevers. Ok so I had a hysterectomy yrs ago ever since horrible irritability and hot flashes still. Fast forward to oct I got a rash on my face they said maylar rash itched burned so bad put on prednisone went away ok then 2 weeks later rash again same thing prednisone goes away then I got kidney stones then fine well kinda always have joint pain in lower back and I have sciatica my knees hurt alot and I over heat all the time and when I get hott my hands turn red and hurt I've been having horrible migraines that only feel better if I squeeze my head. So they tested me for lupis my ana came back positive with high titer but antinuclear tests negative I can't get into rhemotologist till Dec which is so far away I feel terrible all time so tired of hurting and being tired no doctor will help they just refer me to other doctors. Lupis is on both sides of family but sunlight doesn't seem to effect me can anyone help with what this could be? Could it still be lupis?
Like
Helpful
HugInterested in more discussions like this? Go to the Autoimmune Diseases Support Group.
Connect
I don’t have too much to offer as I am not as familiar with Lupus, but I was going to suggest being persistent with calling for a cancellation. My son first started having seizures at 11 and it was a 9 week wait for a pediatric neurologist for full testing, and I called *every.single.day.* for almost two weeks to ask if there had been a cancellation and wound up being able to get a an appt for the following day as I’d already filled out and returned all of their paperwork. If they’ve sent you paperwork for the appt, fill it out, return it. December is a long way away so I’d definitely persist in trying to get that appt moved up. Hope you find some answers.
-
Like -
Helpful -
Hug
3 ReactionsFor the tachycardia-when I was put on estrogen replacement due to low female hormones (menopause), the constant tachycardia (104 beats per minute) disappeared. I am on topical progesterone and biest.
-
Like -
Helpful -
Hug
2 ReactionsDue to your hysterectomy, you might be going into menopause sooner than you think. Please have your doctor check your progesterone and three estrogens. Bioidentical hormone replacement might help your symptoms A LOT. Ask the doctor for a trial on these hormones. Do not have him skip prescribing the progesterone either. Keep the faith. The saying goes, tie a knot on your rope and hang on. Also, go forward each day, one step at a time. Susan
-
Like -
Helpful -
Hug
2 ReactionsI had a hysterectomy yrs ago so understand the menopause thing but I've always had tachycardia do you think it could still help?
Sorry just read your comment lol
The only way to find out is to try it.
Please consider seeing a functional doctor. Although I have a rare autoimmune a lot of my symptoms were caused by the medications, dopsone and Cellcept. After removing them I felt so much better.