← Return to Total Pancreatectomy

Discussion
Luckyone4321 avatar

Total Pancreatectomy

Pancreatic Cancer | Last Active: Aug 19 7:12pm | Replies (39)

Comment receiving replies
Profile picture for christie4re @christie4re

I don’t have any to share to help but thank you for sharing. The disease came back after having the Whipple and the plan is to removing the entire pancreas. I hope others will respond to give more insight. Your response helps me with maybe what to expect. Praying the decision is better. I women on the FB Whipple group responded to my question on what I’d like after having the entire pancreas’s removed. She shared with me that 2025 will make 19 years of her being cancer free. She leaned to manage her diabetes, other also shared the importance of having extra devices because sometimes they don’t work and extra insulin since there are times the pharmacy is out. No one shared a lot of details as I had hoped for. I don’t think it will be easy, it’s been three years and I’m still grateful to be alive but fighting.

Jump to this post


Replies to "I don’t have any to share to help but thank you for sharing. The disease came..."

Cristie,

Just saw your post. Sorry for not responding sooner.

Have you had the surgery. I had mine (total pancreatotomy) March 13, 2025 - Florida.

Creon and insulin process stabilized but have learned so much. I am more than happy to answer any questions or share any information that would help you. Eager to hear from you and how you are doing.

Toni