I had a brain tumor excised in 1989 and as a result my right eye lid has been closed...the right hemisphere of my head is still numb. nothing else sags except that right eye lid. this happened at age 40 and to this day haunts me. I get the double looks, the bold remarks of "can I ask you a personal question" and other stuff that haunts me. After all this time I am still very self conscious and often just come home from outings because I get tired of the "looks!" I felt the neurosurgeon should have sent me to a higher level of care particularly when he didn't have a clue as to what kind of tumor it was, only that it was benign, which was a good thing. I still had a strong professional career (as a nurse exec, ) so was not effected in that manner. I finally wrote him a two page letter stating that he was professionally remiss by not sending me to a large medical center with a strong neurology team...but he let his professional curiosity get the best of him and he was way to young to have that experience. I was young, scared, with a husband just as scared and two small children. To this day it is a demon for me and probably always will be. I am a strong proponent of consulting with the experts and have refused any and all surgeries (para thyroidectomy and Zephyr valve placement) to the Norman Center in Tampa and Duke respectively.