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Parkinson's plus Multiple System Atrophy (MSA)

Parkinson's Disease | Last Active: 3 days ago | Replies (57)
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@lisalucier

Hi @mollymae18, helping other families navigate multiple system atrophy (MSA) is a wonderful way to honor your husband's legacy and your experience as a caregiver. Mayo Clinic Connect is an online community of patients and caregivers who share experiences.

As a 7-year caregiver, what is one tip you would share with someone new to MSA caregiving?

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Replies to "Hi @mollymae18, helping other families navigate multiple system atrophy (MSA) is a wonderful way to honor..."
mollymae18 | @mollymae18 | Mar 24 12:07pm

Thank you for your kindness. I would recommend seeking out support for both you and your significant other. My husband was originally diagnosed with Parkinson’s and we ran all over the country for years trying to find out why his progression and symptoms did not follow typical PD. I wish we had the correct diagnosis sooner. We would have focused more on our bucket list and time together.
We eventually used our local hospice team for support and that was a true sense of support and compassion.
I am here for other caregivers and happy to offer support.

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