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Proliferative Vitreoretinopathy
Eye Conditions | Last Active: May 29 12:06pm | Replies (9)Comment receiving replies
I have PVR and just had surgery membrane peeling (removing g scarring tissue) a sclerle buckle and I had oil out in. The outcome was not positive and they had to remove some of my retina because of scarring tissue. My vision prognosis is poor however in two weeks they want to do a methotrexate injection to help stop the scarring tissue from growing and pulling the last bit of my retina. They say this methotrexate injection is fairly new but there is nothing else out there. If anyone has other information please share. It’s hard to believe it all started with floaters in my right eye in late December 2024 a diagnosed retinal tear, lazik then vitreal hemmorage followed by surgery another detachement and tear. During recovery I had a another retinal detachment with macula off and now I have no vision in my right eye. Wow! PVR is serious and from what I understand nothing I could have done to prevent it.
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@sjm54321
Hello there. My name is Hannah Burks. I feel really grateful to have found your response, as my Dad, Aaron, has been battling PVR for over the past year. His retina spontaneously detached after seeing floaters in his vision in early May of 2025.
Since then, I cannot even tell you how many surgeries my Dad has undergone. The first surgery was unsuccessful, and his retina detached again. We then went back, and Aaron ended up getting a buckle. The next few surgeries have proven unsuccessful. Dad's most recent surgery was to remove scar tissue and put in long-term oil. He has very little vision at all out of his left (affected) eye, and isn't ever expected to regain much more (if anything). He is virtually blind in his left eye, and his vision is VERY warped/distorted.
Our current issue: the vitreous fluid in his right eye (good eye) is separating from his eye. Aaron has very sticky vitreous fluid. There is a 1/5 chance that the fluid will pull off/detach his retina in his right (good eye). Aaron is currently going to see a doctor every two weeks to monitor both eyes. On occasion, he receives methotrexate injections in his left eye to prevent scarring. It seems to work; however, it does not help his vision and is very painful.
Honestly, my family is just doing everything we can to help my Dad- support him, find out if there's anything at all that can be done, and continue to research PVR and try and connect with others who have been through this unique disease. If you have any comments or any knowledge at all to offer, we would be extremely grateful. Honestly, we are practically begging for ideas or advice to be thrown at us, even if it is something we already may know or have tried.
Thank you so much, and I hope your PVR journey has seen some sunshine. Here for you!