1. < Colorectal Cancer

Oxaliplatin is no walk in the park, advice for CAPOX regimen?

Posted by chinoomee @chinoomee, Mar 7, 2024

Just had first infusion today.
Felt fine and now hours later everything hurts ( numbness, tingling, muscle aches, muscle spasms upon sneezing in my jaw, muscle spasms across my eyes/temple upon tear production and of course upon water being just slightly cooler than room temp) how did you guys manage?

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mrgvw | @mrgvw | Mar 17 10:29pm
In reply to @tamobillings "Did you lose hair? I was told these medications don't have hair loss? I will be..." + (show)
@tamobillings

Did you lose hair? I was told these medications don't have hair loss? I will be taking pills (14 days) and infusion 1x per 21-day cycle. Also, I worry about how hard the pills are on your stomach. They said to take with food but not sure yet what will help. I start on the 3/28.

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Yes... I do believe, like most chemo regimens, the Xeloda pills are a bit rough on our digestive tracts. Understand that I've not done Folfox, FLOT, or Capox... I only did the CROSS protocol of Carboplatin and Taxol along with concurrent radiation treatments. I tend to call what I did, the CROSS protocol... baby chemo. I don't believe it's as rough as those other regimens in general. But I also should qualify this by saying when used as a first-line treatment. In general I believe 2nd and 3rd line treatments tend to give us EC patients more difficult side effects. But this is just my observation when talking to hundreds of other patients.

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dam2611 | @dam2611 | Mar 22 10:01am
In reply to @jd1010 "Hi - My husband is really affected by the cold sensitivity. Just wanted more on the..." + (show)
@jd1010

Hi - My husband is really affected by the cold sensitivity. Just wanted more on the cold packs... you applied them to your fingertips and toes after the infusion? For how long and for how many days? Appreciate the tip. Thanks!

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Use the cold hand gloves (healthy hands) and cold pack socks, bought on Amazon, both have ice pack inserts and they really work. Also, suck on ice chips during the oxaliplatin infusion. I've had 7 treatments and it's helped tremendously!

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Moderator
Colleen Young, Connect Director | @colleenyoung | Apr 2 6:28pm
In reply to @tamobillings "I have my first chemo appointment on the 28th with both of these medications. I’m doing..." + (show)
@tamobillings

I have my first chemo appointment on the 28th with both of these medications. I’m doing the infusion and the pills. So taking in all information here about how to manage. I have 4 treatments, 3 months.

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@tamobillings, how are doing?

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tamobillings | @tamobillings | Apr 2 7:08pm

I’m doing alright. I started having heart racing and was worried about continuing with the Capecitabine but my provider hasn’t gotten back to me. They had me go do an EKG because this is stressful to the heart. I’m healthy but I just don’t know if I should resume. This is Adjuvant therapy Just worry about the side effects. I don’t even drink because I hate the feeling so these medications I struggle with.

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