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New to Hydrea for ET

Blood Cancers & Disorders | Last Active: Apr 12 5:25pm | Replies (96)
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@nohrt4me

It isn't vanity to worry that a disease or med will drastically change your appearance. People sometimes just want to know what to expect. And I don't know anyone who takes HU who has had to resort to ball caps.

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janemc | @janemc | Mar 23 6:35am

Please know, nohrt4me, that the wealth of knowledge you share from your 17 years with ET -- as well as from your decade leading an online ET forum -- is tremendously appreciated.

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jackiecarey | @jackiecarey | Mar 23 12:55pm

well ive been on Hydroxurea for two years..I'm 77. I found it takes an adjustment period where my Hematologist adjusted the hydrox up and down. All of us are different and the medication needs to be titrated up and down depending on your lab count numbers.. AS for side effects not terrible I find the longer I'm on hydrox the easier it is to tolerate..I have a feeling you're going to do well..

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