I've had CML for 20 years and want to encourage others

Posted by suzie71 @suzie71, Feb 17, 2019

I have had CML for 20 years. Would love to encourage anyone struggling with it or new to it.

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@nasr

Gleevec working well and the percent below of limit detection for 12 month when can i stooping gleevec doctor

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It’s very encouraging that the Gleevec is working well for you. So for that reason I’m sure your doctor will have you continue with that medication. Whether or not it’s responsible for your current eye symptoms, that is something you may have to discuss with your doctor. You’d hate to interfere with the success of the Gleevec.

There have been studies done which apparently indicate that some patients who remain in remission for 3 years or more may actually benefit from stopping the Gleevec. Here is a link to one of those articles from Cancer.gov: https://www.cancer.gov/news-events/cancer-currents-blog/2020/cml-stopping-tki-treatment-improves-quality-of-life

Only your own doctor can make the determination of changing dosages or stopping the Gleevec. I wish you continued success with your CML journey. Have you talked to your doctor about possibly changing dosages to see if it may help clear your vision symptoms?

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