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Parkinson's plus Multiple System Atrophy (MSA)

Parkinson's Disease | Last Active: Mar 27 3:01pm | Replies (57)
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Profile picture for mollymae18 @mollymae18

Hello,

My husband was an MSA patient at Mayo Clinic. As his spouse of 32 years and caregiver for seven, I joined Defeat MSA Alliance as an advisor, in hope that I can help other families navigate their MSA journey. I have been charged with researching grants that may help MSA patients and their families. Can anyone at Mayo point me in the right direction.

Thank you,
Jodi O'Toole

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Replies to "Hello, My husband was an MSA patient at Mayo Clinic. As his spouse of 32 years..."
karinneke6 | @karinneke6 | Mar 22 8:46am

I waas diagnidrf with MSA-C 2 1/2 years ago. Got worse quickly

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Lisa Lucier, Moderator | @lisalucier | Mar 24 10:54am

Hi @mollymae18, helping other families navigate multiple system atrophy (MSA) is a wonderful way to honor your husband's legacy and your experience as a caregiver. Mayo Clinic Connect is an online community of patients and caregivers who share experiences.

As a 7-year caregiver, what is one tip you would share with someone new to MSA caregiving?

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