MGUS and pain

For my PN symptoms, I've discovered that the toe socks do a nice job countering some of the sensory symptoms between my toes, which is convenient. Wool is better than cotton or synthetics in that regard for me.

And yeah, drugs designed to hit our neurology can certainly cause neurological side effects. Best of luck with your experimentation!

Thank you, Projfan, for the validation that my leg pain may be related. It started a year ago and my labs were abnormal six months ago (altho I hadn’t had labs done for a year prior but they were all normal then-meaning the usual cbc, cmp, etc, not the specific ones that gave me my diagnosis last week). It got really bad for awhile so I stopped stains thinking it was a side effect. No change, not the statins (I tried a couple). The combo, of pain, abnormal labs, diagnosis are too close together to dismiss as not connected. Then there’s the critical need to guard my energy expenditure…
Please keep us informed of your future investigations.

There's an interesting article in the Feb/March AARP magazine about a patient in great pain who couldn't get a diagnosis for years and years. Finally she saw a plastic surgeon, Dr. Echo, at Houston Methodist Hospital who specializes in compressed peripheral nerves, also known as nerve entrapment. She had several surgeries, including sciatic nerve, and is out of her wheelchair, walking without crutches, pain-free. There aren't many of these surgeons in the US and people don't think of this as a cause (outside of carpal tunnel), just look within their own specialties. When the nerves are compressed blood flow is reduced, nerve fibers get damaged, and the result can be pain, weakness or paralysis. If you can find such a specialist, might be worth a try.

I am also experiencing neuropathy in my hands and feet and you’re absolutely correct about getting into see a neurologist. I’ve been trying for six months. In fact it was the pain in my hands and feet and neck that sent me to the doctor in the first place and then they did bloodwork and discovered the MGUS. It’s been a rocky road for me because I thought I was going to die. I’ve never been sick. I’m 76 years old. I’ve always been active and in a good healthy height to weight range and eat a healthy diet and exercise and drink lots of water so in the hand and pain foot pain came on. ( and a slight occasional imbalance). very annoying to a very busy and active Nonnie. The neuropathy has progress while I wait to see the doctor. I am just waiting for that appointment. They did call and move it up from April 24 to April 1 so that is a citizen of plus I have to get my PCP to request a referral it from my insurance company because I have advantage insurance( that was a mistake. It seemed OK at the time because I was so healthy. This string has been very helpful to me and I appreciate every one of you responding. God bless us all.Kleo

@4kleo
I'm glad to hear you were tenacious about getting a referral and appointment to a neurologist. I'm afraid you're correct about advantage plans. They seem so good from the financial investment side, but if you get sick and need to jockey around among specialists to meet your healthcare needs, it can be a problem.
I'm worried that all of us on Medicare will only have advantage plans to choose from, fraught with all of their limitations. Fingers crossed.
I have yet to fully understand the relationship between the pain and the neuropathy. One would think as the nerves are damaged that there would be less pain rather than more. The pain in my feet is really quite severe when it raises it's ugly head. Other times, I forget about it entirely. It does impact my balance and that's a concern. I used to see older people hobbling around and thought that they must be terribly out of shape but I was a distance walker prior to neuropathy. It's incredible how fast it changes your lifestyle.
I do hope that your appointment in April helps. Will you let us know how things go?

Thank you, Patti for the encouraging words. I keep moving. I keep taking my 2 mile walks each day. I want to maintain my balance as much as possible. I haven’t succumb to a cane or walking stick, but I’m not beyond doing that if needed I have several in the closet from my late husband. The hand pain for me is greater than the feet. I’m finding it difficult to do the simplest daily tasks like buttons that came across the other day. It’s just constant pain, especially in the right hand, and will not dissipate regardless what I do .I run cold water, hot water, do exercise. The numbness just pervades And I’m right handed. It’s very inconvenient. Again, thank you for your encouraging words and yes, I will get on here and update what was determined .I’m sure it will be a process. You know meet the neurologist, get some tests,Get the results , Maybe get some therapy or procedure or protocol. It’s just a marathon, isn’t it?K God bless and hugsfrom Houston.

@4kleo I will be thinking about you and hopeful that they will help you.

I have had a lot of neck pain and my shoulders hurt and sometimes burn. But they get telling me its not MGUS well how do you know? Its my body and if its new then what else is it? There saying its Fibromyaigia well I was never tested for it I was told by the symptoms so your just going to guess what I have? I know I was tested to see if I have lupus no lupus but my blood work came back high no arthtritis then what is it no autoimmune disease someone needs to fix it. I'm really tried of trying to see why everyday I hurt?