Connect
After Tymlos
I have been taking Tymlos for just over a year and have an app't to talk to my provider about next steps. I tried alendronate before taking Tymlos and discontinued immediately due to reflux.
I take vitamin D, eat plenty of calcium, but don't exercise (I know I should). Experience with what is next? I've never been on any long-term medication before this and I'm kind of terrified of being tied to these meds and their side-effects.
Like
Helpful
HugInterested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.
Connect
Hi, so sorry I missed seeing this timely!
At my endocrinologist recommendation, I take Tymlos at bedtime. I have a history of low blood pressure so that sounded best to me to avoid a fall. I have had no concerns since I started.
I most always stay hydrated throughout the day, often using an electrolyte in the afternoon/evening. I wouldn’t want to use it too close to bedtime to avoid having to get up to urinate.
I have experienced almost no side effects and I started with the full dose.
Maybe heart palpitations very briefly on one or two occasions since I began in late January of this year.
I hope things go well for you. I initially didn’t think I could do this but it has been easy. I’m wishing you stronger bones with the help of Tymlos and this site.
i'm so grateful for your response. Would you mind telling me what time in the evening you ingest your last liquid and what time you administer your Tymlos dose?
Timing can vary for me, I generally would not drink after 8pm. I take my Tymlos between 10:15 and 10:30 pm each night.
I think I understand correctly that it is somewhat important to administer Tymlos at the same time each day.
Maybe someone else could speak to the importance of that and why.
I take the Tymlos right before bedtime. A mild headache, sometimes, heart palpitations but both disappear quickly, no problem sleeping.
Thank so much. Did you work your way up to a full dose? And if so, how long did it take?
I'm ending up seeing if the insurance will pay for Evenity. If so, I'll do that and then Reclast. Otherwise I guess go on Reclast.
My provider said they are likely to turn me down because I just stopped Tymlos and they won't want to do another bone builder. We'll see.
New here (hope I'm posting in right place ... if not tell me & I will delete here)
On Tymlos since April, started at 3 clicks, went up each week - at first time use of 8 clicks side effect of abdominal pain for 5 days; immediately went to 6 clicks, then back to 7. I have been staying on 7 clicks for two months now. Just fyi, I will be 70 in November.
My problem is: microscopic blood in urine, discovered when urine tests for abdominal pain (pain was mild, by the way). CT scan coming up end of this month. My real worry is: Is Tymlos use causing this? Because there are no good alternatives for me.
Calcium level normal as of the early June urine test (was not tested for calcium in follow up July 8th urine test)
T-score in January: spine was -3.3 and hips -3.5 so I opted for a bone building med. I want to stay on Tymlos if I can. If I am required by stop, I would prefer to try bioidentical hormones to stop the reversal of bone loss that would happen. I have a history of mild gum disease and do NOT want to risk any bisphosphonates. I've never had a fracture.
* If anyone could give me info about blood in urine while using Tymlos, I'd appreciate it.
*Also, if anyone can advise on taking bioidentical hormones (or even possibly Evista) to go to AFTER I must stop Tymlos, I would greatly appreciate that. Thank you all!
My two huge worries. Thank you for any thoughts re my current situation.