Hi, I realize these posts were several months ago, but I just came across them today. I find myself having so much in common with many of you. I see doctors (Dr Koralnik, Aasheeta Bawa) at Northwestern, I am in Shirley Ryan’s clinical trial for brain fog, I’ve tried Amantadine for fatigue and brain fog and I attend NM’s Long Covid support group too. Oh, I also see Dr Roth at SRAL.
Amantadine definitely helped my fatigue however it gave me a false sense of energy that caused me to crash (I have bad PEM). It also gave me a buzzing feeling in my head. I was so torn about it because what it did for fatigue was great. I tried to work with it by pacing but I had a hard time. They also wanted me to take it twice a day (morning and noon) and I take many medicines in the morning and night I was having a hard time remembering to take it at noon. That sounds silly but with my crashes and how bad my other health issues are I just couldn’t get it right. My headaches are bad too so I didn’t like that it was adding to them. So I stopped taking it. 🙁 I am now trying modafinil. I started it a couple weeks ago and I am having side effects so I have to decide what to do. I may talk to the doctors about the medicines to see if there’s a way to make one of them work better — do I need to go back and give Amantadine more time or give Modafinil more time?, Or. is there something to add to one of them to offset the side effects?
We’ll see. I’ve been on this Long Covid journey since 2020 so if I can answer any questions, feel free to ask. 😄