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Blood Cancers & Disorders | Last Active: Apr 12 5:25pm | Replies (96)
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I do believe my mother had undiagnosed ET and died of a stroke at 82. I remember her having uncontrollable nose bleeds which sounds like symptoms of ET. This was in 1997 and I don’t know what was known about this disease at that time.
Replies to "I do believe my mother had undiagnosed ET and died of a stroke at 82. I..."
My guess is that they knew nothing about it, let alone had the lab tests and equipment to test for mutations and many other important things!!
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I'm sorry to hear about your mom. ET is a good guess. Dad had some nosebleeds like that toward the end. Died in 2010. My paternal grandfather died of a massive coronary embolism at 61, a possible indicator of ET. But that was 1959, so who knows? Researchers still believe that the genetic mutations are spontaneous, but because "family clusters" of MPNs have been noted, the current thinking is that we might inherit a tendency to mutate if exposed to the right carcinogens.