How many autoimmune diseases can you have?

Posted by sallysworld73 @sallysworld73, Feb 28 12:51pm

I have just been given my 8th autoimmune diagnosis. For the love of GOD 🙏🏻 how many can one person have? It’s exhausting 😴 to say the least. And they’re all rare ones . Go figure. And no one in my family has them but they tell me that it’s hereditary. I read it’s extremely rarely for ppl to have over 5 …. Really….well lucky 🍀 lucky me! 🙄 does Mayo Clinic ever do consulting on a pro-bono basis? I’m quite positive they don’t take my insurance….🫤

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sallysworld73 | @sallysworld73 | Mar 2 6:20am

In reply to @ksdm "I only have one auto-immune condition, Type 1 diabetes. Should I look for more? Is having..." + (show)

Some ppl only get one. Others get more than one. I wouldn’t go looking. 👀 if it’s meant to come out it will. Just enjoy life.

rottenweather123 | @rottenweather123 | Mar 15 1:55am

I've lost count of how many autoimmune diseases I have, not kidding. Maybe 20? I try to keep a list but new ones are always being diagnosed so I gave up, and the doctors have given up on me too. I was once a very active mom of 4 born close together. I was a long distance hiker on the Appalachian Trail in the days before cellphones. I carried a 50 pound pack and weighed 115 pounds. I shouldn't have carried that much weight. But now I'm in a wheelchair because of Multiple Sclerosis, Polymyositis, Parkinson's, & other crap. I'm on oxygen for interstitial lung disease caused by Antisynthetase Syndrome, an autoimmune disease that also causes a lot of other stuff like "mechanics hands" & other things that I can't remember right now. Plus the usual ones like Lupus , Sjögrens, Reynauds, Systemic Sclerosis, and Ehlers Danlos, MCTD, MAST, Smooth Muscle Antibodies Autoimmune Disease, Tarlov Cysts, Degenerative Disc Disease, Autoimmune Hepatitis, Degenerative Cervical Myelopathy, Nerve Demyelination, Gastroparesis, Small Vessel Disease, Small Fiber Neuropathy, honestly I can't remember all of them. And the new ones keep coming. Rotten DNA. I'm in constant pain all over, everywhere, I can't even sleep in a bed because of an esophageal disorder that makes me vomit in my sleep. So I sleep in the recliner to keep my head elevated. Recliner to wheelchair to bathroom to shower & toilet , then back to wheelchair and then back to the recliner. That's my life. 🫤

rottenweather123 | @rottenweather123 | Mar 15 4:13am

In reply to @ksdm "I only have one auto-immune condition, Type 1 diabetes. Should I look for more? Is having..." + (show)

Is Diabetes type 1 autoimmune? I thought it was genetic. I have type 2 as a result of an unknown severe virus, in hospital a week, every lab test & imaging studies, nothing was revealed except sky high C reactive protein level, fever 40°C (105°F) for over a week, in 2006. After that virus, a constant downhill for my entire body, in a wheelchair now, interstitial lung disease, over a dozen ai diseases, many rare, degenerative disc disease, spontaneous broken vertebrae, in constant pain.

ksdm | @ksdm | Mar 15 5:26am

In reply to @rottenweather123 "Is Diabetes type 1 autoimmune? I thought it was genetic. I have type 2 as a..." + (show)

Type 1 diabetes is said to be an autoimmune condition. I had a ruptured appendix in 2006 that nearly killed me, but I am not sure that was the cause. My A1C crept up to 7.7 and I was put on insulin at age 78. I am 83 now and have no other conditions, fortunately. Sorry you are in pain, that is the worst!!

dkelban | @dkelban | Mar 16 1:45pm

In reply to @rottenweather123 "I've lost count of how many autoimmune diseases I have, not kidding. Maybe 20? I try..." + (show)

You did all the right healthy things, and this is what you get?? There's no fairness in this damn world.

rottenweather123 | @rottenweather123 | Mar 16 6:20pm

In reply to @dkelban "You did all the right healthy things, and this is what you get?? There's no fairness..." + (show)

Yep, you are exactly correct! That's how it goes, right?! I was vegetarian for years, never drank soda pops, practiced yoga, always got back in shape with intense cardiovascular workouts after every pregnancy, breast fed my babies, cooked healthy square meals for my family, always physically active (a long distance hiker on the Appalachian Trail), no drugs, never smoked, always continued to take university courses (after earning my BA in '74) for brain health, even learned a 2d language in my 50s, and this is my "reward." lol 😝. The "normal" people react with such smugness in their false sense of security & say "Well I take care of myself, I do yoga, eat organic, & I'm doing everything I can so "this" will never happen to me!" Lol, the surprises are awaiting for everyone -- it's called DNA, unpredictable tragedies & trauma, & life itself.

dkelban | @dkelban | Mar 16 8:56pm

You got that right

ice187 | @ice187 | Mar 17 6:34pm

I have hypothyroidism, celiac, vitiligo and autoimmune pancreatitis type 2 with multiple organ involvement "kidneys, liver, eyes, mouth", plus my digestive organs, bones, skin. Life is GREAT.

rottenweather123 | @rottenweather123 | Mar 18 3:00am

In reply to @ice187 "I have hypothyroidism, celiac, vitiligo and autoimmune pancreatitis type 2 with multiple organ involvement "kidneys, liver,..." + (show)

Yeah, we're born, life sucks, then we die. The reward is the second journey, the eternal journey, the Journey in the Cosmos with the love, light, joy, & peace of the Divine Creator. On Earth we all suffer. No one escapes this planet without suffering. But the second journey, the Light & Love of the Eternal, where there's no more pain, only Love. And the grand reunion with our loved ones, they will be there to help us Across. This I believe.