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What are treatments for myelofibrosis?
Blood Cancers & Disorders | Last Active: 10 hours ago | Replies (60)Comment receiving replies
@dax1million, I believe there is always hope. Hope may have to be redefined or reframed upon acceptance of the realities we face as they evolve.
I like this writing in an article written by a former colleague Glen Horst called Hope and Denial https://www.virtualhospice.ca/en_US/Main+Site+Navigation/Home/Topics/Topics/Emotional+Health/Hope+and+Denial.aspx
Excerpt
"... hope is linked to the future and to the plans and wishes you have for the future. A serious illness puts question marks over how much future you will have and what it will be. It threatens your control over your future. ... If it becomes clear that there is no cure, your hope may shift to living the rest of your life as well as possible. There is the hope to love and be loved, to feel good about the life you have lived, and to live in the present moment with satisfaction and a measure of peace."
What does hope look like for you and your husband? What helps to reframe hope?
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Colleen, thank you for the nice message and the insert of thoughts that we are facing in this roller coaster ride.
The hardest thing for my husband is he was always a very active person, keeping a perfect yard, repairing anything that needed fixing around the house, or our vehicles. It makes him sad looking around knowing he want be able to do those things. We both pray with Gods wonderful grace and healing of mind and spirit some things can be replaced with other joy and accomplishments in this dark part of life and the sun will shine again. We have loving families to love and friends to cherish and God to guide us.