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Length of treatment
I have cavitary MAC and have been on Azithromycin, Ethambutol & Rifampin daily for 9 months and Arikayce for 8 months and still testing positive. My id doctor just referred me to a new doctor who would have access to additional meds. The new doc said 15% of people who add Arikayce never convert. He added Nuzyra which I just started 3 days ago. I am trying to remain hopeful but I am starting to feel discouraged. Has anyone been on treatment this long and converted?
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@namd @wolfplanetzero I was buying my saline from Base Labs - 50 count 5ml vials for $42.95 until I finally got a prescription which now costs me only $15.00 for 60 vials but they are only 4 ml. For the 5ml, I would use 2.5 and then put the open vial in an empty prescription bottle so I got 2 treatments from each one .
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1 ReactionYou and me both...."It's a daylong challenge, and overnight too." Oh what fun, hypersecretion!
I guess if we are able to keep the bacteria load down we might like to be thankful for the hypersecretion, if that is what is doing it?????? Don't know. I sure bring up those mucus plugs everyday.
Barbara
@mjb24, I have never heard of Nuzyra. Are you in USA or another country? I'm in USA & have not heard of it. I hope it works for you mjb24 I have never heard of Nuzyra. Are you in USA or another country? I'm in USA & have not heard of it. I hope it works for you !
@tte Yes I am in the US, Nuzyra is actually omadacycline. I never heard of it before either.
For me it could be bacteria and/or a 5 cm cavity and/or scarring and/or the bronchiectasis. There's just too much of the dang stuff. Driving me bonkers. Hang in there!
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