How to live after weaning off carvedilol
After being on carvedilol for 7 years in a row, I had to discontinue it because basically it did more harm than provided benefits. I did it because the cardiologist I consulted believed I didn’t need it in the first place and taking it was unnecessary. Actually the guy believes i don't even have arrhythmias but in fact I had several adverse reactions attributable to carvedilol at the time. I had been weaning off carvedilol for 3 weeks, gradually reducing the dose. I reached the zero dose about two weeks ago. Since then, I have had serious problems keeping tachycardias at bay, some of which now and again lead to fibrillation. I feel particularly vulnerable after sleeping, if at all. Any movement causes sudden acceleration of the heart, and some relief is achieved by gradual hydration, but the very act of drinking causes palpitations and rhythm disturbances. As I said, the cardiologist I am dealing with now is of no help because he doesn't seem to believe that I have arrhythmias at all or that I can know how my heart works at any time. The tests he has carried out and/or ordered have not confirmed my condition as I claim, because my heart works like a good watch whenever it is under observation. So basically I have no local dialogue on the subject that would be helpful in any meaningful way. I have no contact with the cardiologist who had prescribed carvedilol in the first place because he died in 2022. Is there a way to train my system to live without carvedilol? Any natural techniques of survival? I am a very lean individual, severely underweight (probably) due to concurrent lung problem, just saying, because most probably the suggestions will be to regulate my body weight, which is unfortunately unachievable. My diet is essentially free of triggers that can cause arrhythmias, and I have been on this diet since fibrillation episodes started in 2012. Fibrillating right now! Thank you for any advice!
Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.
no, i never changed my id, i am always sergi cause it's my name and have never been sergio which is not:)
thank you for your advise!!
View Translation
I tried on the forum messenger. I was at friends this afternoon.
Get a home mobile ECG/EKG device like Kardia Care and take your EKG when you feel your heart racing. Then forward those EKGs to your doctor or better yet, request a heart monitor to wear for 10 days like the ZIO. If your doctor won't do this he is just warm spit. Insurance should pay for the ZIO. Kardia Care is like 8.99/ month after intial purchase of 129.99 when I started 15 months ago. Prices may have changed. Good Luck. Many people habe issues with beta blockers like Metoprolol, Cardilol etc.
Thank you for your concern and kind info!
It's not needed anymore, i got evaluated properly and now i even don't need cardiologist any longer.
But thank you anyway and have a lovely weekend!
View Translation
Unfortunately i don't see the way to either update, or lock or at least edit this subject, so that no one waste their precious time for answers!!
View Translation