1. < Spine Health

Low back pain & neuropathy issues

Posted by timmckinney @timmckinney, Feb 6, 2018

68 years old and lower back+neuropathy issues make staying active hell. Used to be avid jogger and now cannot be on my feet for more than 10-15 minutes. No meds help. Very depressing.

Interested in more discussions like this? Go to the Spine Health Support Group.

Lorie | @lorie1207 | May 26, 2022
In reply to @behealthybehappy "Physical Therapist gave me help for Lower Back pain, and there seem to be many causes..." + (show)
@behealthybehappy

Physical Therapist gave me help for Lower Back pain, and there seem to be many causes for that, so treatments can make a dent in the overall pain.

Jump to this post

I have been unable to find help from my PT, but I still do all the recommended exercises.

REPLY
1 reply
Lorie | @lorie1207 | May 26, 2022
In reply to @jlfisher56 "Totally understand. My pain management /rehab doctor is retiring and I use behavioral--mediation---tapping, i.e., chiropractic, botox..." + (show)
@jlfisher56

Totally understand. My pain management /rehab doctor is retiring and I use behavioral--mediation---tapping, i.e., chiropractic, botox for cervical dystonia, TENS, Voltaren gels, Teracin pain patch 0ne a day, daily exercises from PT and chiropractor, then Topamax an anti-seizure, as needed Prednisone for anti-inflammation, Valium for muscle spasms low dosage, and Morphine that I use 1-3/day depending upon how/what I am doing/feeling. There basically no doctors here anymore only to do procedures of which I have been through the gammat with nothing but more pain and getting hospitalized for a week due to injecting near my spinal cord, nicking my cord leaking spinal fluid. No more will I get those procedures that did nothing but hurt and NO pumps or stimulators. I have arachnoiditis already. My cervical and lumbar fusions have enough problems going on and the myofascial pain syndrome plus fibromyalgia. The doctors don't like narcotics even though it helps but they'll push high dosage anti-seizure meds like neurontin of which I have seen so many side effects and people feeling horrible on. Three times I had to get off on when my dosage increased so NO MORE! Has has many as morphine but no reversal agent that I know of.I have met and corresponded to many like me and who you read about, we are the ones suffering due to abusers. We have been responsible, never asked for out meds early, never needed an increase and use all the modalities listed above! Doesn't matter we are all grouped in and try to make us feel even worse than we already do.

Jump to this post

I'm so sorry for all you're going through. I had a PCP who just kept giving me more & more Percocet until I was taking 10 a day along with Topamax, Effexor, Gabapentin, Ativan, etc. I got to the point I was in pain, tired, depressed, and my teeth were falling out.
I ended up going to a new PCP who sent me to a wonderful pain management doc who won't stop at anything to help me. I know I will be in pain for the rest of my life and have been for over 20 years, but she's trying everything she can for now.
I've had 3 surgeries, not counting the one to implant my nerve stimulator. I'm still depressed, but not as much and my daily headaches are gone just not my migraines. I AM off all opioids and am on a compounded pain cream and marijuana plus a muscle relaxer and Topamax for my migraines and Effexor for the neuropathy. I still get a ton of injections, but I'm not completely wheelchair-bound yet.

REPLY
fibromyalgia001 | @fibromyalgia001 | May 26, 2022
In reply to @lorie1207 "I have been unable to find help from my PT, but I still do all the..." + (show)
@lorie1207

I have been unable to find help from my PT, but I still do all the recommended exercises.

Jump to this post

Something here may be of help.
https://fibromyalgia001.wordpress.com/2016/06/06/spine-pain-self-treatment-6-16/

REPLY
mikeoc | @mikeoc | Mar 7 6:45pm

You sound like . Are you taking any Medication or therapy ?

REPLY
cnill | @newyorknill | Mar 8 11:42am
In reply to @powerl2017 "Same hear I have three procedures no help . I am looking to stem cell info..." + (show)
@powerl2017

Same hear I have three procedures no help . I am looking to stem cell info now.

Jump to this post

Please share your stem cell info you acquire. I am in the same boat at all of you. Ablation did not help me after a lot of cortisone injections, gabapentin is 50%.
If I take a whole pill I go into a coma. lol. Have severe neuropathy in both feet and legs. a lot of numbness. I'm 82 years young. God bless you ALL

REPLY
1 reply
jenatsky | @jenatsky | Mar 13 7:19pm

@newyorknill xo you know that post you replied to an rather old. Another thing about stem cell therapy, it is not approved by the FDA because it has not shown efficacy at relieving pain.

REPLY
Mentor
John, Volunteer Mentor | @johnbishop | Mar 14 7:40am
In reply to @newyorknill "Please share your stem cell info you acquire. I am in the same boat at all..." + (show)
@newyorknill

Please share your stem cell info you acquire. I am in the same boat at all of you. Ablation did not help me after a lot of cortisone injections, gabapentin is 50%.
If I take a whole pill I go into a coma. lol. Have severe neuropathy in both feet and legs. a lot of numbness. I'm 82 years young. God bless you ALL

Jump to this post

Hi @newyorknill, I agree with @jenatsky about avoiding FDA unapproved stem cell therapy treatments. I posted an upcoming webinar that you might want to watch for other options to help with your neuropathy pain.

FYI - Upcoming Foundation for Peripheral Neuropathy Webinar

Emerging Options for Neuropathic Pain Management
Wed, Apr 9, 2025 11:00 AM - 12:00 PM CDT
------------------------
Don't miss this insightful webinar featuring guest presenter Alexander Chamessian, MD, PhD, on neuropathic pain management. Explore advanced neuromodulation techniques like spinal cord stimulation, dorsal root ganglia stimulation, and peripheral nerve stimulation, along with other treatment options. Learn about future therapies and get answers during the live Q&A session.
Register here - https://register.gotowebinar.com/register/7712309254369771606

REPLY
1 reply
57phil | @57phil | Mar 14 5:10pm
In reply to @johnbishop "Hi @newyorknill, I agree with @jenatsky about avoiding FDA unapproved stem cell therapy treatments. I posted..." + (show)
@johnbishop

Hi @newyorknill, I agree with @jenatsky about avoiding FDA unapproved stem cell therapy treatments. I posted an upcoming webinar that you might want to watch for other options to help with your neuropathy pain.

FYI - Upcoming Foundation for Peripheral Neuropathy Webinar

Emerging Options for Neuropathic Pain Management
Wed, Apr 9, 2025 11:00 AM - 12:00 PM CDT
------------------------
Don't miss this insightful webinar featuring guest presenter Alexander Chamessian, MD, PhD, on neuropathic pain management. Explore advanced neuromodulation techniques like spinal cord stimulation, dorsal root ganglia stimulation, and peripheral nerve stimulation, along with other treatment options. Learn about future therapies and get answers during the live Q&A session.
Register here - https://register.gotowebinar.com/register/7712309254369771606

Jump to this post

@johnbishop Thanks, John. I really appreciate your content. I am new at this neuropathy stuff. Nice to know there was hope out there. We forge on

REPLY
1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Mar 14 5:15pm
In reply to @57phil "@johnbishop Thanks, John. I really appreciate your content. I am new at this neuropathy stuff. Nice..." + (show)
@57phil

@johnbishop Thanks, John. I really appreciate your content. I am new at this neuropathy stuff. Nice to know there was hope out there. We forge on

Jump to this post

Thanks Phil! @57phil. I should have also mentioned that the Foundation for Peripheral Neuropathy also has a YouTube channel where they keep all of their previous webinars that have a lot of great information/videos - https://www.youtube.com/@foundationforperipheralneu4122.

REPLY
1 reply
57phil | @57phil | Mar 14 5:31pm
In reply to @johnbishop "Thanks Phil! @57phil. I should have also mentioned that the Foundation for Peripheral Neuropathy also has..." + (show)
@johnbishop

Thanks Phil! @57phil. I should have also mentioned that the Foundation for Peripheral Neuropathy also has a YouTube channel where they keep all of their previous webinars that have a lot of great information/videos - https://www.youtube.com/@foundationforperipheralneu4122.

Jump to this post

@johnbishop awesome. I see you’re pretty good at this stuff. Bless you John. I will definitely look at those videos.

REPLY
View MoreView Less
Please sign in or register to post a reply.