@lsheerin, I always like to hear that recioient and caregiver are doing well after the transplant surgery! For those of us with an organ transplant, it brings back many memories of our own journey and wait, and for those who are just beginning or are enduring the wait it provides hope!
How long did I wait - long story! After I was diagnosed with (PSC) Primary Sclerosing Cholangitis, I monitored carefully by my local GI for around 8 years with a low MELD score. However, once my score began to rise, it did so with a vengence. I was evaluated and approved for the UNOS list in Nov. 2008. In mid Jan. 2025 I was inactivated from the list due to possible cance in bile bile ducts. When my regional transppant center was not successful to rule mout cancer, I was referred to Mayo Clinic in Rochester, however acute kidney failure landed me in ICU and on emergency dialysis and in critical condition. Fotunately, the doctors stabilized my condition and Mayo Clinic agreed to still take me as a patient. I was flown out of ICU last week Feb. 2009 and spent 2 extra weeks in hospital at Mayo where I was diagnosed to be cancer free! My kidneys, however were deemed to be beyond recovery. I was able be reactivated on the UNOS list for a liver, and after evaluation, I was also listed for a kidney in mid March. On April 22, 2009 I was blessed to receive a successful transplant. In my mind I was ont the list for at least 10 years because my disease was a progressive one with no known cure.

My husband and I learned that miracles are always possible! For anyone waiting, I implore you to Never Give Up! We lived on prayer, hope, and one day at a time.