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Camzyos side effect of itchiness?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Mar 26 8:27pm | Replies (17)

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@jmr091805

is there any strategy that your doctor recommends for the itching? I've been itching like mad too. I saw my dermatologist for something else yesterday and he said I could take allegra or zyrtec literally every day for years to stop the itching. And I'm seeing the allergist tomorrow. I'm afraid of not taking the Camzyos for a few days to see if the itching stops. Afraid for two reasons: getting HOCM symptoms back (and finding out that I might just have to have open heart surgery), and also all of the rules the Bristol Myers Squibb has, including that every month you are taking Camzyos, they won't ship it to you for the next month until you have 7 or less pills left. Crazy. But the itching may be better than having someone shave my heart walls. I don't know.

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Replies to "is there any strategy that your doctor recommends for the itching? I've been itching like mad..."

I haven’t discussed the itching with my doctor. Just want to deal with it myself. I take an over the counter antihistamine when it’s so bad that I can’t sleep. Works great because I fall asleep and am impervious to the itch.
I too don’t want to stop the Camzyos to see whether it’s the culprit. The delivery to me is monthly and no one ever asks me how many tablets I have left.
Best not to stop it without the cardiologist’s permission. Please let us know what the allergist says. All the best.